In America: What's That?
Living with hidradenitis suppurativa (HS) can be frustrating. What can make it worse is the lack of information and research available for patients and their loved ones. Many people quickly jump online to research the ins and outs of HS but have trouble finding reliable information. Even more difficult can be finding someone who is actually living with HS to connect with and share experiences.
To learn more about the challenges of living with hidradenitis suppurativa, we are conducting our In America survey. By taking our survey, you can bring awareness to the realities of life with hidradenitis suppurativa and help others feel less alone.
What is the survey about?
The survey covers “basics” like your diagnosis and treatment experiences, but also dives into the nuances of hidradenitis suppurativa, like the emotional impact and day-to-day challenges. In addition, you’ll have the opportunity to not only tell us about hidradenitis suppurativa but also any other conditions you are living with and how each impacts your life.
Why should you take the survey?
Each person who takes the In America survey contributes to a better understanding of hidradenitis suppurativa as well as other health conditions. With better knowledge, we can help others who are navigating health challenges feel less alone. We hope to capture a full picture of all aspects of your health experiences and bring greater awareness to conditions that may be misunderstood. Sharing your experiences through the survey can reveal how similar each person’s journey is, as well as the differences that make each journey unique.
What will the survey ask me?
The survey will ask about different moments of your journey with hidradenitis suppurativa, including:
- Symptoms and symptom management
- Quality of life
- Treatment awareness and experience
- Other diagnosed conditions
We do not require your name, address, or other personal information for you to participate. You also do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when you are able. You may continue where you left off.
How do we use the In America survey data?
Survey responses help us and our partners better understand the hidradenitis suppurativa community. All survey responses remain confidential, reported only in total. This means your specific responses will not be reported individually. All information will become property of Health Union, LLC.
What happens after I take the survey?
After the survey closes each year, HSDisease.com will share the responses back to the community and highlight important findings from the survey. You can read the latest In America survey findings in Boiling Point: Results from the 2nd Hidradenitis Suppurativa In America Survey.
But that is not all. Throughout the year, we publish articles and videos based on what we learned from the survey. We hope this survey-driven content contributes to the information available to those affected by hidradenitis suppurativa and helps you all connect with others who walk the same path.
Sharing your story can make a difference, and we believe each story can change how others understand life with hidradenitis suppurativa.
Still have questions? Comment below, or email us at firstname.lastname@example.org for more information.
Will you tell us what life with HS is really like by taking our In America survey?
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