Hidradenitis Suppurativa In America: What Is That?
Living with hidradenitis suppurativa (HS) can be frustrating. What can make it worse is the lack of information and research available for patients and their loved ones. Many people quickly jump online to research the ins and outs of HS but have trouble finding reliable information. Even more difficult can be finding someone who is actually living with HS to connect with and share experiences.
In an effort to learn more about the challenges of living with HS, we are conducting a survey. By taking our survey, you can bring awareness to the realities of life with HS and help others feel less alone.
What is the survey about?
The survey covers basics like diagnosis and treatment. It also dives into the nitty-gritty, including the emotional impact and day-to-day challenges of HS. We hope to learn more about all things HS, including complementary and alternative treatments, diet and nutrition, symptoms, and quality of life!
Why should I take the survey?
Each person who takes the survey contributes to better HS awareness and knowledge. You can also help others who are dealing with HS to feel less alone. Sharing through the survey can reveal the similarities and differences between patients' journeys with HS and bring greater awareness to this condition that affects so many.
What will the survey ask me?
The survey will ask about:
- Flare management
- Quality of life and relationships
- Healthcare professional engagement
- Treatment awareness and experience
We do not require your name, address, or other personal information.
Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your browser and return to it when you are able. You will resume where you left off.
How do we use the In America survey data?
Survey responses help us and our partners better understand the HS community. All survey responses are kept confidential. They are reported only in total. This means your specific responses will not be reported. The answers will become the property of Health Union, LLC.
What happens after I take the survey?
After the survey closes, the Editorial Team at HSDisease.com creates an infographic from your responses. The infographic highlights important findings from the survey.
But that is not all. We also publish articles and videos based on learnings from the survey. We hope that this survey-driven content contributes to the information available to those affected by HS. Our goal is to help people connect with those who have walked the same path.
One voice may seem like it will not make a difference, but each person can change how others perceive HS and bring comfort to someone coping with a diagnosis.
Still have questions? Comment below, or email us at email@example.com for more information.
Have you taken the Hidradenitis Suppurativa In America survey yet?