Hidradenitis Suppurativa Resources
There are many different organizations and websites focused on helping people with hidradenitis suppurativa (HS). Some offer information and news about the condition, while others support those living with the condition. In addition to HSDisease.com, you can find help, build awareness, and learn about research on HS at the resources below.
Hidradenitis Suppurativa Foundation
The Hidradenitis Suppurativa Foundation (HSF) focuses on providing the latest HS information to people who live with HS and their doctors. The HSF covers 3 main areas: education, research, and advocacy.
HSF maintains a focus on the needs of those living with HS. The foundation has a list of HS specialty clinics and locations, and helps connect those with HS to clinical trials. The foundation also funds research into the causes, treatment, and eventual cure for HS. HSF hosts a yearly international conference, the Symposium on Hidradenitis Suppurativa Advances, where the latest research is shared.1
American Academy of Dermatology Association
The American Academy of Dermatology (AAD) is a worldwide organization of dermatology doctors. AAD focuses on caring for those with skin, hair, and nail diseases, including HS. The association’s website is divided into resources for doctors and resources for people living with dermatology issues. A feature of the site allows visitors to find dermatologists by location and specialty.2
Hope for HS
A volunteer-operated nonprofit, Hope for HS is a free support group for those with HS and their loved ones. The organization operates 9 locations around the United States for in-person meetings. These meetings partner doctors, researchers, and staff of a local medical center with those seeking support. People attending the meetings do not have to be under the care of the host facility to attend. Hope for HS also runs virtual sessions open to all. Every gathering focuses on peer-to-peer support. Meetings provide information for better understanding HS. Those attending also learn ways to advocate for HS.3
The Hidradenitis Suppurativa Trust
Based in the United Kingdom (UK), the Hidradenitis Suppurativa Trust (HS Trust) provides information, support, and awareness for people with HS. The trust helps doctors and people with HS understand and identify symptoms. This helps ensure an accurate and early diagnosis. The site also offers information on treatments for HS, along with a listing of current clinical trials in the UK.4
The HS Trust hosts free, in-person support groups at various locations in the UK. Additionally, the trust operates a support line (both phone and email) for information, resources, and a compassionate ear. When you visit the site, you can download 5 free pamphlets that cover different aspects of living with HS.4
No BS About HS
No BS About HS provides basic information about HS and treatment options. The site provides a guide on talking with your doctor about HS and how the disease impacts your life. A section of the site provides tips on living with HS. This provides a place where you can read about others’ experiences and share your own.5
HSConnect.org
HS Connect provides those dealing with hidradenitis suppurativa with support and resources, to improve their quality of life. Their mission is to contribute to HS awareness by providing up-to-date research and information in an effort to better educate those affected by HS.6
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