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Anna0209

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"Stressed & exhausted. Along with HS I also have scalp psoriasis and ocular histoplasmosis. Sweat seems to trigger a lot of my problems. Being obese doesn't help the issue either. Sometimes I feel like I just wanna get in my car and drive away from everyone and everything. I've dealt with the symptoms for years and until just recently I've never gotten a diagnosis. Just antibiotics and sent on my way. Over time the bacteria has become MRSA which terrifies me. I got one under my right breast years ago and it was MRSA but never a diagnosis. Needless to say this has been a very frustrating journey."


  1. I'm currently not on an antibiotic but I'm sure it wont be long before I am.

  2. @Annalea0209, very frustrating!! I am sorry for all that you have been through. And who would have thought the ER doctor was the one to diagnose you! Are you currently on an antibiotic? How are you feeling this week? Sending hugs, Amylyn 💜


  3. I've been diagnosed for a few months now. I've had these abscesses for a few years now. My dr has always just given me am antibiotic and sent me on my way. When I went to the ER a few months ago for a covid test I just happened to have an abscess and the dr talked to me about it and diagnosed me with HS. Its frustrating because of all the years I've been seeing this dr he has never given me a diagnosis. I've asked why why why many times and gotten the "some people get them more" response.

  4. @Anna0209 - Hi friend. We see you and hear you! What you're experiencing and being so overwhelmed is so valid - dealing with everything you are dealing with is not easy. It can feel never-ending. You said you just recently got a diagnosis - how long ago was that? Also, what type of doctor diagnosed you? I am so sorry to hear the treatment was not effective. Too many folks with HS have experienced less than satisfactory care, and at times damaging in the process of healing. Have you considered getting a second opinion? We get it; seeking out medical treatment when you're used to being miss treated is scary, exhausted, overwhelming. But, we will be here to hear you out every step of the way. I am not sure where you live, but HS Foundation has a list of clinics that specialize in HS: https://www.hs-foundation.org/hs-specialty-clinics/. HSConnect also has a great resource: https://www.hsconnect.org/dermatologists. We'll look forward to hearing more from you. Sending lots of hugs 💜 Amylyn, Team member