Living With Hidradenitis Suppurativa
Last updated: May 2023
My name is Danielle Hall aka Passion The Lioness. I was diagnosed with Hidradenitis Suppurativa (HS) when I was 18 years old. I am now 32 years old. I used to be so embarrassed. The pain was unbearable at times. In 2018 I got my first surgery. Between 2018 and 2019 I had 5 major surgeries. They took my sweat glands out of my underarms. Then they did a skin graft. The most painful part was getting the wound vacs changed. I got both underarms done at the same time. It felt like someone was ripping my skin apart every time.
HS is not for the weak
I've had surgery on my leg. I got a skin graft on my leg as well. They used the skin from my thighs to do the skin grafts. The doctors believe the Hidradenitis Suppurativa caused me to have Cellulitis in my legs. That was even more painful. I couldn't walk it hurt so bad. I've also had surgery on my groin area. This condition is not for the weak. If anything it shows your strength. We endure a lot. I have started taking Humira it has lessened some of my symptoms. The journey still continues. Thankful that GOD gives me the strength to keep going. I'm very grateful for my mother and my support system. It definitely takes a village.
How important is HS awareness to you?
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