Living with HS (Part 2)
Last updated: October 2022
I am on 2 forms of antibiotics. 1 was for 14 days for a major bacteria, and the other I have to take every day of my life. The antibiotics that I was given for 14 days did not do anything good. It was still draining, and I can't stop it. I change out of my clothes when I get wet by the draining. Hate to describe this, but I like to share what all this is doing to me. My right genital area is so raw due to the drainage never getting healed and is still swollen for months. I've seen a doctor, but it's my HS that is causing it, and fighting back and harder. I'm taking HUMIRA Pen shots nothing is stopping it I am losing control.
Trying to control the drainage
I have very bad anxiety cause of this no matter what antibiotics they put me on, the HS has no effect on it. I don't care if I get rid of the HS, but there has got to be a way to get it to be removed from the area that's constantly draining nonstop. If they just make the drainage stop. I can live with the disease or reroute it I will be cool with that do you like to know how much I drain a day well if I use a shot glass it will not be enough shot glass I would need more. But none of my doctors can get to the root apparently, the root moves. I need help, and there has got to be a doctor who only specializes in just HS because if there is not a cure, then find a way to stop it from constantly draining. At this point, I don't care about the disease I only want the drainage to stop, so I don't feel like the seat of my pants is wet all the time. Thank you for letting me share.
When you need to vent about HS, who do you turn to first?
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