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Diagnosis Journey: Share Your Experience

Getting an HS diagnosis can take months, years, and a dozen doctors. Or your doctor might have diagnosed you when you first started showing signs of HS. We want to hear it all. Share and hear from others about their diagnosis journey.

  1. Diagnosis was a difficult journey. I was diagnosed when I was about 13 but I had HS since I was 11. By the time I was diagnosed I had stage 3 HS all over my body. When I wasn't diagnosed I was told I had MRSA, a rare blood disorder, and at one point I was told I was going to die. It's so important the medical community becomes educated about HS and diagnosing it. I was traumatized as a child because of these misdiagnoses.

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