Books Written By HS Warriors On My Reading List
Last updated: March 2022
Chances are if you have been living with HS and its potentially debilitating effects, you have probably sought experiences from other warriors to better understand what you are going through. In today’s digital age, finding helpful information about HS is easier than ever. I first heard another person with my experience by watching a YouTube video, but I have since learned that there are a plethora of resources ranging from social groups to books, to online sites that share the HS experience.
My reading list for HS warriors
I am sharing this list to not only share voices of warriors that you may not have heard of but to also hopefully introduce you to someone who has an experience similar to yours. I must admit though, that the very limited number of books written about the HS experience leaves me hopeful that more of us will speak out and actively publish our stories in the future.
In my own search about information related to HS, I found a few easily accessible titles that I thought would be interesting to share. I have already read The Hidden Plague by Tara Grant and highly recommend this book as a must-read, but I also wanted to share lesser-known titles about the HS experience. These are books that I am adding to my reading list and hope to share my thoughts on these titles in more detail in the future.
Living with Hidradenitis Suppurativa by Tammi Johnson
From the summary, it’s clear that this book was written in order to share the author’s learned experiences as well as the knowledge she has collected over time. I was especially drawn to this book as I read the preview and felt the rawness and honesty in her words as she described a bleeding wound.
From my own experience, I know how frustrating it can be to have a draining wound and not even know that your clothes or other objects have been soiled. I expect that this book will contain helpful resources as well as products that may be beneficial in continuing to fight HS which I am eager to learn more about.
HS WARRIOR: One Woman's Ongoing Battle with Hidradenitis Suppurativa by Pen W.
This book caught my attention because the cover has a picture of a woman who looks like a fighter as she holds her sword. I really appreciated how this spoke to the warrior mindset that many of us have as we fight HS and this only made me want to read more. I was captivated by the preview of this book and how it plainly stated that HS is not a happy disease.
As someone who experiences the effects of HS on a daily basis, I am happy that I can relate with other warriors and know that there are other people in this world who know what it feels like to experience the same pain that I do. I also appreciated how bluntly the author spoke about her feelings in the preview and the way each word felt like my experience.
I WILL NOT HIDE Hidradenitis Suppurativa (HS): Patient Personal Stories 1st Edition by Ronald J Bercume
Reading the preview for this book took me back to my own days before diagnosis and what life was like living in silence. I found this perspective to be interesting because most of us only talk about our journey after diagnosis and building community once we have already shared our fight with the disease.
Unfortunately, too many of us live in silence for years before diagnosis, and reading the intro of this book brought me back to my own experience. Additionally, I love the message behind this book of sharing the stories of other warriors in order to bring awareness to the experiences we fight every day.
When you need to vent about HS, who do you turn to first?