Hidradenitis Suppurativa and Healthcare Provider RelationshipsWe recently conducted the 2021 Hidradenitis Suppurativa (HS) In America Survey. A total of 438 people with HS completed the survey. One thing we wanted to understand was how they...Reactions0reactionsComments0 comments
Flares in Unusual Places: Yes, HS Can Occur On The Back!I have had hidradenitis suppurativa for 19 years. For most of those years, I have been able to hide my HS with my clothes. This is because my HS occurred...Reactions0reactionsComments2 comments
HS Awareness Week 2022: HS Is More Than BoilsHidradenitis Suppurativa Awareness Week is here, and we’re thrilled to have you join us to bring more awareness to HS. We know HS is so much more than “just boils”...Reactions0reactionsComments0 comments
Our Foray Into AyurvedaIt’s true that Ayurveda (meaning the science of life) is a health care system that lays emphasis on how one can eliminate the root cause of a disease rather than...Reactions0reactionsComments1 comments
Walking With HS (Part 2)In this video, I define what walking with HS means to me and how my particular journey has been unique. I encouraged viewers and fellow HS Warriors to share their...Reactions0reactionsComments0 comments
Recipe for Art - Plastic Cup SuncatchersSometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art can help us to process our feelings...Reactions0reactionsComments0 comments
Talking With Professors About HSLet’s face it, most people don’t know what hidradenitis suppurativa is unless they have personally experienced it or have met someone else who has it. When you tell a new...Reactions0reactionsComments1 comments
What is Medical PTSD?Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a soldier returning from war or a victim of...Reactions0reactionsComments1 comments
Items I Keep In My HS Bugout BagHello beautiful people! In todays video, I’ll be sharing some of my favorite items that I keep in my HS Bugout Bag. Please feel free to leave some comments and...Reactions0reactionsComments4 comments
Pilonidal Cyst – The Butt KickerLet me just start this by saying I’m not a trucker (otherwise known as a lorry driver in the UK). I can’t drive a manual transmission at all, and I...Reactions0reactionsComments0 comments
Mixed Sprouts Dry CurryEvery Sunday, I would relish a bowl full of Khichadi, a one-pot dish made with rice and lentils accompanied by pickle and curd for lunch. But after I was diagnosed...Reactions0reactionsComments0 comments
Loving the Summer AgainI was grateful when for college, I moved to a city that had a very long winter, as opposed to somewhere like Miami, where I would be forced to shed the...Reactions0reactionsComments1 comments
The Invisibility of PainSome people with hidradenitis suppurativa are able to manage their pain using over-the-counter or prescription pain medicines, but many others are not. Sometimes, pain cannot be fully controlled by medicine...Reactions0reactionsComments7 comments
The Obesity Bias: How Doctors Dismiss People Who Are OverweightIf you go to the doctor for a health issue or concern, or because you are in pain, you would expect a thorough exam to get to the root cause...Reactions0reactionsComments0 comments
Stigma Surrounding HSIn this video, Chaz discusses the stigma around hidradenitis suppurativa and share why he tries to combat it. Chaz believes that HS Warriors, their community, and their medical teams can...Reactions0reactionsComments1 comments
Warm Hug Apple CakeI have been experimenting lately with alternative ingredients. Well, an alternative to me - I grew up with old-fashioned wheat flour, full butter, eggs from the chickens outside, you get...Reactions0reactionsComments3 comments
Getting an Inflectra (Remicade) InfusionStarting a new medication always makes me anxious. When my Humira stopped being effective for me, my doctor recommended we begin Inflectra (the equivalent to Remicade). I was not sure...Reactions0reactionsComments0 comments
Communication, Body Language, and HSCommunication is one of the most important aspects of life. It sets a positive tone to create and to maintain long lasting relationships. It is a basic requirement that serves...Reactions0reactionsComments2 comments
Recipe for Art: Wrapping StonesSometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art can help us to process our feelings...Reactions0reactionsComments2 comments
Recovery, A Gradual ProcessIn case you missed it, check out Parts 1 and 2 of this series! Tina was discharged from the hospital the following day. It was a huge sigh of relief...Reactions0reactionsComments1 comments
