Person in front of laptop connects with peers

How Do I Connect With Other People In The Hidradenitis Suppurativa Community?

Many people with hidradenitis suppurativa (HS) have told us that it can be challenging to find other people in your community who truly understand your experiences with HS. Our goal at is to connect people with HS and caregivers with one another and build an online community that helps bridge that gap.

How do I connect with others on

Our Community Hub is a great place to see what people are talking about in the HS community. Here, we share trending topics and the latest updates, and we have a spot where you can connect with other members. It is our one-stop shop for all things HS!

Most people also start by reading our articles about life with hidradenitis suppurativa. Most of the articles in this community are written by an HS warrior. Additionally, our Editorial Team brings the latest news and research updates to the community.

Articles recommended by our readers:

Stories, forums, and more

Articles are just the tip of the iceberg! Everyone who is affected by hidradenitis suppurativa has their own unique story to tell. In our Stories section, anyone can share what their experience with HS has been like, as well as read stories from other community members.

Forums are another way to dive deeper into a conversation around a specific topic. For example, this forum is a place to discuss your HS triggers, while this one focuses on what people in our community wished others knew about their HS.

You can also use forums to ask questions you may have about HS or its treatments. Reaching out on forums is a great way to get answers to any of your β€œIs this normal?” questions and hear directly from those who also have HS.

Our contributor team at writes so many relatable articles about life with HS. If an article strikes a chord with you, you can feel free to comment and share your thoughts.

What if I want to communicate privately?

Some aspects of hidradenitis suppurativa can be hard to openly discuss on the internet. You might worry about sharing too much on social media. What if people from your personal life see? But you still want to connect with others. If you are concerned about privacy, it is easy to stay anonymous on by choosing a username that does not reveal any personal information. This is the best way to engage without revealing who you are.

Creating an anonymous username

Choose a username that does not use your first and last name or any nicknames that might easily identify you. Then register following these few simple steps:

  1. Click to register for
  2. Enter your anonymous username.
  3. Enter your email address. Your email will not be visible to other users on Your email will be used to log in to your account and receive your weekly newsletter.

Using anonymously

Once you log in using the email for your anonymous username, you will be able to participate on completely anonymously. You can share as much or as little as you want about your experience with HS. If you choose to remain anonymous, you will want to make sure you do not post anything that includes personal information about your identity. Some examples might include:

  • Your location (generally mentioning your state or country is fine!)
  • Full names of your family members or friends
  • Your place of employment
  • Detailed personal or medical information

Thank you for joining us

Thank you for being a member of We hope you enjoy connecting with others in the HS community! πŸ’œ

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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