L- Lysine for HS DiseaseI've been taking 1000 mg of L- Lysine daily! I haven't had a big flare since! It is for skin and tissue maintenance. Not sure this is what's working, but...reactions1comment
Learning to Heal: My Journey With HS Disease and Self-AcceptanceLiving with hidradenitis suppurativa hasn’t been easy. At first, I didn’t even understand what was happening to my body — just that the pain, the scars, and the flare-ups were...reactionscomments
Hidradenitis Suppurativa is a MonsterHS has taken a lot of physical glory. I'm out of shape and tired throughout the majority of the day, unless I tea-up or drink beer. Both of my armpits...reactions1comment
Accidentally Ate Dairy: HS ReturnedI went vegan 11 years ago. Fiver years later I thought, "Hang on, I haven't had to have a 7th HS surgery," and I've been HS-free since. UNTIL RECENTLY. Six...reactions1comment
Castor oilI’ve struggled with HS disease for 25 years, since my first pregnancy. Sometimes it’s better and sometimes it’s worse. Now I’ve got it in my armpit and it started growing...reactions9comments
Work Life JuggleI started experiencing hidradenitis suppurativa not even 3 years ago now. I am 23 going on 24 and currently have 7 painful open sores in my groin area, all of...reactions2comments
Putting On A Brave FaceI was diagnosed with HS at 16 and I've lived with this condition now for 7 years. HS has progressed significantly each year, each year getting harder to be compliant...reactions2comments
My Disease Turned Me Into An Advocate For HSI remember the first time I noticed something was wrong. I was only six or seven years old, and I had a small bump on my inner thigh. It didn't...reactions2comments
Living with Stage 3I’ve had boils or lesions since I was a teen but recently was diagnosed with HS. And it was Stage 3. Living with HS has been a nightmare within itself...reactions3comments
Always Seems to Be SomethingI really don’t know exactly when HS symptoms presented itself, but it was sometime in high school for me. I am 34 as I write this. I really haven’t shared...reactions2comments
Losing All HopeWhen I was a teenager sometime after I hit puberty I started to get “boils” all the time or at least that’s what I was always told they were. I...reactions5comments
My First Time SharingHello... My name is Alicia and I got my first lump on the back of my neck at the age of 17. I am now 41 yrs old and I...reactions1comment
19 Years of HSI got diagnosed by a wonderful ob-gyn at 18. I've lived with stage 3 and both sides of the groin and have only been lanced once. I have recently been...reactions1comment
My HS JourneyI first started experiencing symptoms of hidradenitis suppurativa around the age of 12. I'm now 32. It was very painful and confusing, especially since I get it on my groin...reactions2comments
Living With Hidradenitis SuppurativaMy name is Danielle Hall aka Passion The Lioness. I was diagnosed with Hidradenitis Suppurativa (HS) when I was 18 years old. I am now 32 years old. I used...reactions1comment
Never will be cured :(Began at 23 with groin area lesions. Went away until my forties and then started in the groin area again and also this time in my buttocks. Then in my...reactionscomments
Living with HS (Part 2)I am on 2 forms of antibiotics. 1 was for 14 days for a major bacteria, and the other I have to take every day of my life. The antibiotics...reactionscomments
Dismissed and DeniedI had my first boil on my bikini line when I was 19. I was very skinny, fit, and healthy. I went into the walk-in clinic for it where they...reactions2comments
Living with HSI have been living with HS since 2007. The first one started out at the base of the tail bone then it was surgically removed. After that it kept spreading...reactionscomments
My Battle AgainThis is now April 2022.. My Dermatologist dismissed me from her treating me for Hidradenitis Suppurativa. I felt alone again with this battle that is now raging through my body...reactionscomments
