Stories

I was diagnosed with HS at 16 and I've lived with this condition now for 7 years. HS has progressed significantly each year, each year getting harder to be compliant...

I remember the first time I noticed something was wrong. I was only six or seven years old, and I had a small bump on my inner thigh. It didn't...

I’ve had boils or lesions since I was a teen but recently was diagnosed with HS. And it was Stage 3. Living with HS has been a nightmare within itself...

I really don’t know exactly when HS symptoms presented itself, but it was sometime in high school for me. I am 34 as I write this. I really haven’t shared...

When I was a teenager sometime after I hit puberty I started to get “boils” all the time or at least that’s what I was always told they were. I...

Hello... My name is Alicia and I got my first lump on the back of my neck at the age of 17. I am now 41 yrs old and I...

I got diagnosed by a wonderful ob-gyn at 18. I've lived with stage 3 and both sides of the groin and have only been lanced once. I have recently been...

I first started experiencing symptoms of hidradenitis suppurativa around the age of 12. I'm now 32. It was very painful and confusing, especially since I get it on my groin...

My name is Danielle Hall aka Passion The Lioness. I was diagnosed with Hidradenitis Suppurativa (HS) when I was 18 years old. I am now 32 years old. I used...

Began at 23 with groin area lesions. Went away until my forties and then started in the groin area again and also this time in my buttocks. Then in my...

I am on 2 forms of antibiotics. 1 was for 14 days for a major bacteria, and the other I have to take every day of my life. The antibiotics...

I had my first boil on my bikini line when I was 19. I was very skinny, fit, and healthy. I went into the walk-in clinic for it where they...

I have been living with HS since 2007. The first one started out at the base of the tail bone then it was surgically removed. After that it kept spreading...

This is now April 2022.. My Dermatologist dismissed me from her treating me for Hidradenitis Suppurativa. I felt alone again with this battle that is now raging through my body...

I have gotten one lesion for years. Around 2012 I got several lesions in the groin area. No one knew what it was, and I was humiliated. I was married...

My first memory of an HS lesion is burned into my brain: I’m a smiley bright-eyed, fair-haired girl, at school in about 4th or 5th grade, walking down the hallway...

Good morning all.. Hope everyone had a wonderful Christmas.. Well for a week now with no relief insight.. It's the size of a walnut shell on the inner side and...

I imagine loving someone with HS is difficult. Plans constantly changing or being cancelled, the emotional rollercoaster of hospital trips, surgeries and the aftermath of the surgery. Seeing your partner...

For the past 3 weeks I have been feeling really ill. I have coughed and just felt drained. So this week a boil reared its ugly head again. I was...

Being officially disabled, according to the U.S. government’s definition and designation, is tricky. People who haven’t had to deal with disability don’t know that even that is divided into two...