Work Life JuggleI started experiencing hidradenitis suppurativa not even 3 years ago now. I am 23 going on 24 and currently have 7 painful open sores in my groin area, all of... By hanbear5181 min readBookmark for laterReactions0reactionsComments2 comments
Putting On A Brave FaceI was diagnosed with HS at 16 and I've lived with this condition now for 7 years. HS has progressed significantly each year, each year getting harder to be compliant... By emma32491 min readBookmark for laterReactions0reactionsComments2 comments
My Disease Turned Me Into An Advocate For HSI remember the first time I noticed something was wrong. I was only six or seven years old, and I had a small bump on my inner thigh. It didn't... By CommunityMember285de92 min readBookmark for laterReactions0reactionsComments2 comments
Living with Stage 3I’ve had boils or lesions since I was a teen but recently was diagnosed with HS. And it was Stage 3. Living with HS has been a nightmare within itself... By CommunityMembercd7a021 min readBookmark for laterReactions0reactionsComments3 comments
Always Seems to Be SomethingI really don’t know exactly when HS symptoms presented itself, but it was sometime in high school for me. I am 34 as I write this. I really haven’t shared... By Tamien Elder1 min readBookmark for laterReactions0reactionsComments2 comments
Losing All HopeWhen I was a teenager sometime after I hit puberty I started to get “boils” all the time or at least that’s what I was always told they were. I... By MJS7275 min readBookmark for laterReactions0reactionsComments5 comments
My First Time SharingHello... My name is Alicia and I got my first lump on the back of my neck at the age of 17. I am now 41 yrs old and I... By CommunityMember10771 min readBookmark for laterReactions0reactionsComments1 comments
19 Years of HSI got diagnosed by a wonderful ob-gyn at 18. I've lived with stage 3 and both sides of the groin and have only been lanced once. I have recently been... By Kgraham1 min readBookmark for laterReactions0reactionsComments1 comments
My HS JourneyI first started experiencing symptoms of hidradenitis suppurativa around the age of 12. I'm now 32. It was very painful and confusing, especially since I get it on my groin... By teamfreewill671 min readBookmark for laterReactions0reactionsComments2 comments
Living With Hidradenitis SuppurativaMy name is Danielle Hall aka Passion The Lioness. I was diagnosed with Hidradenitis Suppurativa (HS) when I was 18 years old. I am now 32 years old. I used... By PassionTheLioness1 min readBookmark for laterReactions0reactionsComments1 comments
Never will be cured :(Began at 23 with groin area lesions. Went away until my forties and then started in the groin area again and also this time in my buttocks. Then in my... By fqualls1 min readBookmark for laterReactions0reactionsComments0 comments
Living with HS (Part 2)I am on 2 forms of antibiotics. 1 was for 14 days for a major bacteria, and the other I have to take every day of my life. The antibiotics... By Williamk471 min readBookmark for laterReactions0reactionsComments0 comments
Dismissed and DeniedI had my first boil on my bikini line when I was 19. I was very skinny, fit, and healthy. I went into the walk-in clinic for it where they... By Katsup4 min readBookmark for laterReactions0reactionsComments2 comments
Living with HSI have been living with HS since 2007. The first one started out at the base of the tail bone then it was surgically removed. After that it kept spreading... By Williamk471 min readBookmark for laterReactions0reactionsComments0 comments
My Battle AgainThis is now April 2022.. My Dermatologist dismissed me from her treating me for Hidradenitis Suppurativa. I felt alone again with this battle that is now raging through my body... By Marlena1 min readBookmark for laterReactions0reactionsComments0 comments
HS JourneyI have gotten one lesion for years. Around 2012 I got several lesions in the groin area. No one knew what it was, and I was humiliated. I was married... By AM in La.1 min readBookmark for laterReactions0reactionsComments0 comments
My HS JourneyMy first memory of an HS lesion is burned into my brain: I’m a smiley bright-eyed, fair-haired girl, at school in about 4th or 5th grade, walking down the hallway... By Jen Ess6 min readBookmark for laterReactions0reactionsComments2 comments
Painful and More PainGood morning all.. Hope everyone had a wonderful Christmas.. Well for a week now with no relief insight.. It's the size of a walnut shell on the inner side and... By Marlena1 min readBookmark for laterReactions0reactionsComments1 comments
Loving Someone with HSI imagine loving someone with HS is difficult. Plans constantly changing or being cancelled, the emotional rollercoaster of hospital trips, surgeries and the aftermath of the surgery. Seeing your partner... By Jsquires961 min readBookmark for laterReactions0reactionsComments2 comments
Not WellFor the past 3 weeks I have been feeling really ill. I have coughed and just felt drained. So this week a boil reared its ugly head again. I was... By Marlena1 min readBookmark for laterReactions0reactionsComments9 comments