Hi there, I am new here but have been dealing with Hidradenitis since 2014.
Over the years I found that histamine producing food like yogurt, almonds, tomatoes, peppers and a whole bunch of other foods triggered outbreaks. So I just quit eating those things…begrudgingly because I love yogurt with a handful of almonds. I also love tomatoes and peppers, etc.
Additionally, I found that my outbreaks often coincided with my menstrual cycle. So I figured that histamines must also be involved. Turns out your body produces histamines during your period. Another thing I found out was that I had endometriosis and that produces even more histamines. I was constantly having super painful outbreaks every month that would barely be healing before another would start.
My solution that was working for me was to triple my generic Zyrtec antihistamines every day for a week, clean the area with rubbing alcohol, put a tiny bit of Neosporin with pain relief on one of those NexCare bandages to seal up the outbreak area and it would usually go away in a week. It was still painful but not excruciating and not a 3 week ordeal or a trip to a surgeon to cut open the tract.
Well, then I started looking into why I had such an issue with histamines as I really hadn’t any issues previous to 2014. According to everything I was reading, it sounded like I had a histamine intolerance which basically means my body wasn’t producing enough of the Diamine oxidase (DAO) enzymes to control the level of histamines in my system. There are DAO supplements but they are expensive and I couldn’t find any evidence they really worked.
Fast forward to the end of last year when I began to get nauseous and vomit all the time. I went to my doctor who recommended a gastroenterologist. Had my appointment with the gastroenterologist and he said we should start by testing me for H. Pylori. I had never even heard of H. Pylori! It’s a bacteria that basically takes over your gut. And the test is a breath test where you blow into a bag, drink a cup of water with urea in it and then blow into another bag. Before the test you have to refrain from using omeprozole or similar drugs for 10 days and have nothing to eat or drink for about 6 hours before. I took the breath test and 2 days later I got the results that I was positive for H. Pylori.
The treatment is 2 antibiotics, omeprozole and chewable bismuth taken in different combinations first thing in the morning, with breakfast, lunch and dinner and at bedtime while avoiding any alcoholic beverages for 14 days. While doing the treatment, I looked up everything I could find about H. Pylori and found that it is also histamine producing! And, it also suppresses the DAO enzymes that regulate histamine levels in your body!
I finished my treatment on January 2nd but I still needed to take another breath test 4-6 weeks after treatment concluded to see if the treatment worked.
In the interim, I decided to do an experiment. I bought several packages of Chobani Black Cherry yogurt (my favorite) and a couple bags of roasted almonds and decided to eat the yogurt with almonds 2-3 times a day and see how long it would take for my Hidradenitis to flare up. I didn’t think I’d get very far because usually one cup would do it. Well! I’ve eaten probably 20 cups of yogurt with almonds now and I’ve not had even one single outbreak. Not one!!! I haven’t been able to eat that much yogurt for 10 years!
I’m just recovering from a cold right now so I can’t go in for my follow up H. Pylori breath test just yet but I’m guessing that bacteria has been eradicated and, it appears, the Hidradenitis has gone with it.
All this to say that you may want to ask to have an H. Pylori test. I read that most people with H. Pylori never even have any symptoms and I, clearly, didn’t have any for years until recently. Let me know if you have any questions or if you get tested for H. Pylori, I’d be interested in hearing the results.