Self-Care for Hidradenitis Suppurativa
Last updated: May 2023
It’s really hard to feel good when you’re having a hidradenitis suppurativa flare. You feel emotionally and physically drained and in so much pain. That’s why self-care is so important.
Here are some of my favorite reminders and forms of self-care.
Not only could it help your flares, but baths can also be super relaxing. It’s just you alone in the bathroom with the comforting water. Get some epsom salt bubble bath, light some candles, turn down the lights, and just breathe and enjoy the rest and relaxation.
I have a little wooden table that goes across the bathtub so I can read, use my phone, or watch a movie while bathing without worrying about anything falling in the water. I definitely recommend one to make bath time even better.
I also love baths because I find that my flares dry out and heal faster if I soak in epsom salt. Helping me relax while helping my flares? Heck yes, sign me right up for that form of self-care.
Silence your cell phone
It’s okay to ignore a text or not answer the phone. When I’m flaring, I get so drained. I find it physically and emotionally hard to hold a conversation and that doesn’t just go for in real life, but virtually too. I’m sorry if it takes me a long time or there’s a delay in answering. I am physically, emotionally, and socially drained and I’m not just saying this, but really, it’s not you, it’s me. I need time to recuperate, heal, and to try to get my body feeling better. That’s where the little bit of energy I have is being channeled to going.
Take off of work (or school)
I don’t mean to sound harsh, but you are replaceable to your job. If you quit or get fired, your job would look to hire someone to replace your spot immediately. Please don’t feel guilty for calling out sick to work.
This one is really hard for me and I feel so guilt every single time I have to call out of work. I have to remind myself that it’s just a job and my health is more important.
I have a really hard time saying “no” to people. No matter the situation, if I say “no,” I always feel like I’m letting them down and they’ll hate me or be mad. But I’ve added so much stress and anxiety to my life because of this. I could’ve avoid so many awkward, uncomfortable, and stress-inducing situations if only I said no. And stress and anxiety cause me flares so really, I need to start saying no.
This one also goes for when I’m flaring. If I’m not feeling well, I tend to feel guilty if I cancel plans or say no to going somewhere. But it’s okay to say no to going to an event or social obligation. It’s not like you asked to be in pain. You have to put your body and your health first. People will understand. And if they don’t, that says a whole lot more about them than it does about you.
So, these are my favorite reminders and forms of hidradenitis suppurativa self-care. It’s so important to put yourself first. You’re just trying your best to feel your best. You can’t control the way this disease is making you feel. Practice self-care to help yourself feel the best you can.
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