HS Photos...Whether you've been living with hidradenitis suppurativa for several years or you just received a diagnosis, this is a space to share photos of your HS journey. #HSWarriors 💜 ...reactions3repliesAwarenessFlares
5 TV Shows That Distract Me from My Flare Pain...When I have a flare, they are all-consuming. It will take over my body, my mind, and my daily habits. In order to counteract this bonkerness (it’s a word, I...reactionscomments
Telling Your Story May Be Good for Your Health...“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...reactionscomments
HS & Intimacy...Does anybody else feel guilty when they think of giving in to their sexual urges especially if you have HS in the groin and buttock area? I know I struggle...reactions9repliesIntimacy & RelationshipsScaringTips & Advice
What Are Digital Therapeutics?...Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...reactionscomments
The Benefits of Remote and Contract Work for the Chronically Ill...Chronic illnesses can be debilitating. You could be thriving, agile, and able-bodied one day and unable to get out of bed the next. It's an unpredictable experience. But this isn't...reactions3comments
How Earthing Can Help Ease Chronic Pain...Have you ever spent time outside and realized that nature seemed to heal something inside of you? I know I definitely have and this is why I make an effort...reactionscomments
So You Think You Have HS - Now What?!...Maybe you saw that episode of Dr. Pimple Popper and realized the lesions under your arms/legs/groin/back/neck/etc. look surprisingly the same, maybe you have been googling symptoms and came across HS...reactionscomments
Are Atopic Dermatitis and Hidradenitis Suppurativa Related?...Atopic dermatitis and hidradenitis suppurativa (HS) are both skin conditions. Atopic dermatitis is the most common type of eczema. Often simply called eczema, it causes dry, itchy, and scaly patches...reactionscomments
Simple Tricks For Managing Armpit Flares...I want to share some of my tricks for when I get Hidradenitis flares in my armpits. These tricks are just my own personal favorites and what works for me...reactions4comments
Unsolicited Advice...No matter how well-intentioned, unsolicited advice is the worst. What is the WORST advice you've been given about managing your HS?...reactions6repliesTips & Advice
How old were you when you were diagnosed?...Getting a correct diagnosis can take so long. How old were you when you were officially diagnosed with hidradenitis suppurativa?...reactions30repliesDiagnosis
How A Trip to the Dermatologist Crushed My Treatment Dreams (Part 1)...Chances are, if you have HS and you are seeking treatment options, you have probably been to a dermatologist as one of the first steps in your treatment plan. For...reactionscomments
Blessed Anyways...My name is Marlena... I have suffered from this for almost 28 years now... I have had MRSA a few times because of this nasty disorder. I have tunneling everywhere...reactions13comments
This Is What Happens During A Remicade Infusion (Part 1)...Two years ago, my dermatologist and I decided to stop Humira and try a different TNF inhibitor, Remicade (infliximab). As an off-label prescription, this medicine is considered an experimental way...reactions2comments
What do you do when you feel overwhelmed by HS? ...Today I looked down at one of my HS wounds and some skin is hanging off of it. I broke down in tears today because it can be extremely hard...reactions1replyWound CareCopingMental Health
How do you plan to beat the heat this summer?...Warmer weather is complicated for those living with HS. While we may want to enjoy the warmer months, heat can trigger flares. What are your go-to tips and tricks to...reactions2repliesTriggersWeatherFlares
Carrot Fries...When first starting my nightshade-free journey, there was one food I knew I needed to find a replacement for pronto: french fries! I am more of a savory person than...reactions3comments
My Personal Experience Seeing a General Surgeon When My Flares Get Bad...Hidradenitis Suppurativa is a lot of trial and error when it comes to finding what works best when you’re flaring or having an outbreak. It’s no secret that I try...reactions3comments
Wound Care Hacks Every HS Patient Should Know...Wound care is central to the healing of hidradenitis suppurativa (HS). If wounds are not cared for properly, it can leave room for bacteria growth and possible infection. While every...reactions5comments
