Hidradenitis Suppurativa (HS) Advocate Hosts HS Awareness Summit...Managing my Hidradenitis Suppurativa (HS) through the years has taught me that healing can be more beneficial when the mind, body, and soul are addressed at once rather than separately...reactionscomments
This Is What Happens During A Remicade Infusion (Part 2)...Check out Part 1 of Katy's story, This Is What Happens During A Remicade Infusion. Remicade infusions involve a lot of waiting. Next, I wait for the medicine to be...reactionscomments
Chronic Illness and Burnout: Recognizing the Signs (Part 1)...We have all been there before. You have received your diagnosis, sat in your thoughts about said diagnosis, and now you feel ready to become the expert on this newfound...reactions4comments
Turmeric: Will It Help And How Do You Use It?...If you’ve been on the internet or read a magazine in the past 5 years, you have probably heard someone talk about adding more turmeric to your diet and that...reactions7comments
HS Photos...Whether you've been living with hidradenitis suppurativa for several years or you just received a diagnosis, this is a space to share photos of your HS journey. #HSWarriors 💜 ...reactions3repliesFlaresAwareness
5 TV Shows That Distract Me from My Flare Pain...When I have a flare, they are all-consuming. It will take over my body, my mind, and my daily habits. In order to counteract this bonkerness (it’s a word, I...reactionscomments
Telling Your Story May Be Good for Your Health...“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...reactionscomments
HS & Intimacy...Does anybody else feel guilty when they think of giving in to their sexual urges especially if you have HS in the groin and buttock area? I know I struggle...reactions9repliesTips & AdviceScaringIntimacy & Relationships
What Are Digital Therapeutics?...Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...reactionscomments
The Benefits of Remote and Contract Work for the Chronically Ill...Chronic illnesses can be debilitating. You could be thriving, agile, and able-bodied one day and unable to get out of bed the next. It's an unpredictable experience. But this isn't...reactions3comments
How Earthing Can Help Ease Chronic Pain...Have you ever spent time outside and realized that nature seemed to heal something inside of you? I know I definitely have and this is why I make an effort...reactionscomments
So You Think You Have HS - Now What?!...Maybe you saw that episode of Dr. Pimple Popper and realized the lesions under your arms/legs/groin/back/neck/etc. look surprisingly the same, maybe you have been googling symptoms and came across HS...reactionscomments
Are Atopic Dermatitis and Hidradenitis Suppurativa Related?...Atopic dermatitis and hidradenitis suppurativa (HS) are both skin conditions. Atopic dermatitis is the most common type of eczema. Often simply called eczema, it causes dry, itchy, and scaly patches...reactionscomments
Simple Tricks For Managing Armpit Flares...I want to share some of my tricks for when I get Hidradenitis flares in my armpits. These tricks are just my own personal favorites and what works for me...reactions4comments
Unsolicited Advice...No matter how well-intentioned, unsolicited advice is the worst. What is the WORST advice you've been given about managing your HS?...reactions6repliesTips & Advice
How old were you when you were diagnosed?...Getting a correct diagnosis can take so long. How old were you when you were officially diagnosed with hidradenitis suppurativa?...reactions30repliesDiagnosis
How A Trip to the Dermatologist Crushed My Treatment Dreams (Part 1)...Chances are, if you have HS and you are seeking treatment options, you have probably been to a dermatologist as one of the first steps in your treatment plan. For...reactionscomments
Blessed Anyways...My name is Marlena... I have suffered from this for almost 28 years now... I have had MRSA a few times because of this nasty disorder. I have tunneling everywhere...reactions13comments
This Is What Happens During A Remicade Infusion (Part 1)...Two years ago, my dermatologist and I decided to stop Humira and try a different TNF inhibitor, Remicade (infliximab). As an off-label prescription, this medicine is considered an experimental way...reactions2comments
What do you do when you feel overwhelmed by HS? ...Today I looked down at one of my HS wounds and some skin is hanging off of it. I broke down in tears today because it can be extremely hard...reactions1replyCopingMental HealthWound Care