Are Atopic Dermatitis and Hidradenitis Suppurativa Related?...Atopic dermatitis and hidradenitis suppurativa (HS) are both skin conditions. Atopic dermatitis is the most common type of eczema. Often simply called eczema, it causes dry, itchy, and scaly patches...Reactions0reactionsComments0 comments
Simple Tricks For Managing Armpit Flares...Hi everyone! Today I thought I would share some of my tricks for when I get Hidradenitis flares in my armpits. These tricks are just my own personal favorites and...Reactions0reactionsComments2 comments
Unsolicited Advice...No matter how well-intentioned, unsolicited advice is the worst. What is the WORST advice you've been given about managing your HS?...Reactions0reactionsComments6 repliesTips & Advice
How old were you when you were diagnosed?...Getting a correct diagnosis can take so long. How old were you when you were officially diagnosed with hidradenitis suppurativa?...Reactions0reactionsComments30 repliesDiagnosis
How A Trip to the Dermatologist Crushed My Treatment Dreams (Part 1)...Chances are, if you have HS and you are seeking treatment options, you have probably been to a dermatologist as one of the first steps in your treatment plan. For...Reactions0reactionsComments0 comments
Blessed Anyways...My name is Marlena... I have suffered from this for almost 28 years now... I have had MRSA a few times because of this nasty disorder. I have tunneling everywhere...Reactions0reactionsComments13 comments
This Is What Happens During A Remicade Infusion (Part 1)...Two years ago, my dermatologist and I decided to stop Humira and try a different TNF inhibitor, Remicade (infliximab). As an off-label prescription, this medicine is considered an experimental way...Reactions0reactionsComments2 comments
What do you do when you feel overwhelmed by HS? ...Today I looked down at one of my HS wounds and some skin is hanging off of it. I broke down in tears today because it can be extremely hard...Reactions0reactionsComments1 repliesWound CareCopingMental Health
How do you plan to beat the heat this summer?...Warmer weather is complicated for those living with HS. While we may want to enjoy the warmer months, heat can trigger flares. What are your go-to tips and tricks to...Reactions0reactionsComments2 repliesFlaresTriggersWeather
Carrot Fries...When first starting my nightshade-free journey, there was one food I knew I needed to find a replacement for pronto: french fries! I am more of a savory person than...Reactions0reactionsComments3 comments
My Personal Experience Seeing a General Surgeon When My Flares Get Bad...Hidradenitis Suppurativa is a lot of trial and error when it comes to finding what works best when you’re flaring or having an outbreak. It’s no secret that I try...Reactions0reactionsComments3 comments
Wound Care Hacks Every HS Patient Should Know...Wound care is central to the healing of hidradenitis suppurativa (HS). If wounds are not cared for properly, it can leave room for bacteria growth and possible infection. While every...Reactions0reactionsComments0 comments
Heat and HS: How I Plan To Beat The Heat This Summer...It’s almost that time of year again. That time of year when some of us HS warriors find ourselves in an imaginary race trying to beat the heat and keep...Reactions0reactionsComments0 comments
Nightshades - What They Are & Why They Might Trigger You...Like many people who live with HS, it has taken me years of trial and error to figure out what triggers my flares, and somehow the list keeps on growing!...Reactions0reactionsComments0 comments
Starting the Autoimmune Protocol Diet for Hidradenitis Suppurativa...Starting any new lifestyle is difficult and can be a huge adjustment, but when these steps are implemented while battling a chronic illness there's the added anxiety about how this...Reactions0reactionsComments0 comments
Sex & HS: How To Navigate The Bedroom Around Your Flares...There is nothing that irritates me more than being in the mood only to remember that I’ve got a monster of a lesion between my legs, which can make sex…er...Reactions0reactionsComments0 comments
Skin check-in! How are you doing?...Share with an emoji in the comments: 🔥 I am flaring 😩 I can feel a flare coming 🙌 My skin is pretty clear right now...Reactions0reactionsComments2 repliesFlares
Important Hidradenitis Suppurativa Myths...Hidradenitis suppurativa (HS) is unknown to most people, even many medical professionals. This ignorance leads to many myths and misconceptions about HS. There are the more common myths that most...Reactions0reactionsComments0 comments
30 Things You Might Need to Hear If You Know Someone With Hidradenitis Suppurativa (Or If You’ve Never Heard of Hidradenitis Suppurativa)...I love lists. I love pro and con lists, to-do lists, grocery shopping lists, “5 Practical Gifts for Chess Players” lists. You name a list, and I’d probably be fascinated...Reactions0reactionsComments0 comments
How I Discovered My Triggers and Avoid Them...Discovering my triggers has been an uphill battle. Because our bodies change as we get older and so do my food tolerances. Where I once was fine with eating a...Reactions0reactionsComments0 comments
