Medically Misgendered: Fighting For Appropriate Care As A Non-Binary Person...I am non-binary and I use the pronouns she/they. For me, this means I do not subscribe to any gender. I sometimes present as 'feminine' and sometimes as 'masculine', sometimes...reactions4comments
My HS Story (Part 2)...In case you missed it, read Part 1 of Jasmine's HS Story. I am a privileged patient. I've had access to great healthcare all of my life. This access was especially...reactionscomments
HS and PCOS: My Experience Having Both and Why They Might Be Related...PCOS, or polycystic ovarian syndrome, is a common comorbid condition for those that have Hidradenitis Suppurativa. I have both and want to share my experience trying to treat them both...reactions2comments
The Skin I Am Stuck In: Results From the Hidradenitis Suppurativa In America Survey...From misdiagnosis and managing flares that show up overnight to the emotional toll of pain and isolation, it is normal to feel overwhelmed by the challenges of life with HS...reactions2comments
Advice for the Newly Diagnosed...I was diagnosed with hidradenitis suppurativa 7 years after my first flare. I felt conflicting emotions after my diagnosis. It took me a long time to learn how to advocate...reactions10comments
What do you think would be the best job for someone who suffers from HS?...Hello to all, As someone who has been living with HS for 14 years and counting, thankfully I was still able to maintain employment throughout the years, despite how progressively...reactions19repliesWork & EmploymentAwareness
Low Carb Snack Ideas...If you’ve read any of my previous articles, you might already know that my Hidradenitis triggers are gluten and processed sugar (besides stress, anxiety, and depression). Whenever I have anything...reactions1comment
How A Trip to the Dermatologist Crushed My Treatment Dreams (Part 2)...Check out the Part 1 of this series How A Trip to the Dermatologist Crushed My Treatment Dreams. The doctor rushed out of the room and left us waiting for...reactionscomments
How I Make Meal Time an Act of Self-Care...It is true that self-care has become quite the buzzword in wellness arenas over the past few years. Yet, I can’t get enough of finding ways to practice self-care in...reactionscomments
Rolling On With HS: Why I Made The Decision To Start Using Mobility Aids...I have had HS since I was 13 years old. All through high school, it spread across both my inner thighs and my groin. My doctor first suggested using a...reactionscomments
Joey Torre...Joey Torre is a 32-year-old charismatic humanitarian who loves to create content for his YouTube Channel, “Torre Style”. Although Joey has many passions in life, such as creating content, cooking...
Tia Ivy...Tia was previously a patient leader on HSDisease.com. Tia Ivy is a patient advocate that has helped educate HS patients and bring awareness to the disease since 2018. In addition...
Hidradenitis Suppurativa and the ears...Okay, so I think I've been developing a very mild case of HS in my ears or on my inner earlobe. I don't really know. All I know is when...reactions9repliesSymptomsTips & AdviceWound Care
What do you want to read about in our articles?...What do you want to read about that the articles haven't discussed yet? What topics would you like to see discussed?...reactions4replies
Do you think your HS is hereditary?...Does anyone else in your family have HS? My dad and my sister do, I'm curious if anyone else has that experience....reactions28replies
Tips for wound care on the go...What are your tried and true tips for dealing with wound care while out in public? What are your must have products with you at all times?...reactions1replyFlaresCaregiving
Hidradenitis Suppurativa (HS) Advocate Hosts HS Awareness Summit...Managing my Hidradenitis Suppurativa (HS) through the years has taught me that healing can be more beneficial when the mind, body, and soul are addressed at once rather than separately...reactionscomments
This Is What Happens During A Remicade Infusion (Part 2)...Check out Part 1 of Katy's story, This Is What Happens During A Remicade Infusion. Remicade infusions involve a lot of waiting. Next, I wait for the medicine to be...reactionscomments
Chronic Illness and Burnout: Recognizing the Signs (Part 1)...We have all been there before. You have received your diagnosis, sat in your thoughts about said diagnosis, and now you feel ready to become the expert on this newfound...reactions4comments
Turmeric: Will It Help And How Do You Use It?...If you’ve been on the internet or read a magazine in the past 5 years, you have probably heard someone talk about adding more turmeric to your diet and that...reactions7comments
