How I Make Meal Time An Act Of Self-Care...It is true that self-care has become quite the buzzword in wellness arenas over the past few years. Yet, I can’t get enough of finding ways to practice self-care in...Reactions0reactionsComments0 comments
Rolling On With HS: Why I Made The Decision To Start Using Mobility Aids...I have had HS since I was 13 years old. All through high school, it spread across both my inner thighs and my groin. My doctor first suggested using a...Reactions0reactionsComments0 comments
Joey Torre...Joey Torre is a 32-year-old charismatic humanitarian who loves to create content for his YouTube Channel, “Torre Style”. Although Joey has many passions in life, such as creating content, cooking...
Tia Ivy...Tia was previously a patient leader on HSDisease.com. Tia Ivy is a patient advocate that has helped educate HS patients and bring awareness to the disease since 2018. In addition...
Hidradenitis Suppurativa and the ears...Okay, so I think I've been developing a very mild case of HS in my ears or on my inner earlobe. I don't really know. All I know is when...Reactions0reactionsComments9 repliesSymptomsTips & AdviceWound Care
What do you want to read about in our articles?...What do you want to read about that the articles haven't discussed yet? What topics would you like to see discussed?...Reactions0reactionsComments4 replies
Do you think your HS is hereditary?...Does anyone else in your family have HS? My dad and my sister do, I'm curious if anyone else has that experience....Reactions0reactionsComments28 replies
Tips for wound care on the go...What are your tried and true tips for dealing with wound care while out in public? What are your must have products with you at all times?...Reactions0reactionsComments1 repliesFlaresCaregiving
Hidradenitis Suppurativa (HS) Advocate Hosts HS Awareness Summit...Managing my Hidradenitis Suppurativa (HS) through the years has taught me that healing can be more beneficial when the mind, body, and soul are addressed at once rather than separately...Reactions0reactionsComments0 comments
This Is What Happens During A Remicade Infusion (Part 2)...Check out Part 1 of Katy's story, This Is What Happens During A Remicade Infusion. Remicade infusions involve a lot of waiting. Next, I wait for the medicine to be...Reactions0reactionsComments0 comments
Chronic Illness and Burnout: Recognizing the Signs (Part 1)...We have all been there before. You have received your diagnosis, sat in your thoughts about said diagnosis, and now you feel ready to become the expert on this newfound...Reactions0reactionsComments4 comments
Turmeric: Will It Help And How Do You Use It?...If you’ve been on the internet or read a magazine in the past 5 years, you have probably heard someone talk about adding more turmeric to your diet and that...Reactions0reactionsComments7 comments
HS Photos...Whether you've been living with hidradenitis suppurativa for several years or you just received a diagnosis, this is a space to share photos of your HS journey. #HSWarriors 💜 ...Reactions0reactionsComments3 repliesAwarenessFlares
5 TV Shows That Distract Me from My Flare Pain...When I have a flare, they are all-consuming. It will take over my body, my mind, and my daily habits. In order to counteract this bonkerness (it’s a word, I...Reactions0reactionsComments0 comments
Telling Your Story May Be Good for Your Health...“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...Reactions0reactionsComments0 comments
HS & Intimacy...Does anybody else feel guilty when they think of giving in to their sexual urges especially if you have HS in the groin and buttock area? I know I struggle...Reactions0reactionsComments9 repliesIntimacy & RelationshipsScaringTips & Advice
What Are Digital Therapeutics?...Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...Reactions0reactionsComments0 comments
The Benefits of Remote and Contract Work for the Chronically Ill...Chronic illnesses can be debilitating. You could be thriving, agile, and able-bodied one day and unable to get out of bed the next. It's an unpredictable experience. But this isn't...Reactions0reactionsComments3 comments
How Earthing Can Help Ease Chronic Pain...Have you ever spent time outside and realized that nature seemed to heal something inside of you? I know I definitely have and this is why I make an effort...Reactions0reactionsComments0 comments
So You Think You Have HS - Now What?!...Maybe you saw that episode of Dr. Pimple Popper and realized the lesions under your arms/legs/groin/back/neck/etc. look surprisingly the same, maybe you have been googling symptoms and came across HS...Reactions0reactionsComments0 comments
