15 Years with Hidradenitis Suppurativa (HS)As 2023 approached, I realized this marked 15 years since my HS introduced itself like the most unwelcome of visitors. I first started having HS symptoms when I was 13...Reactions0reactionsComments9 comments
How COVID-19 Affected My HSCOVID-19 has changed our world. I was ordered to work from home in 2020 and I had a huge fear of catching COVID-19. I knew it could jeopardize my health...Reactions0reactionsComments0 comments
Tattoos & HSHistorically, tattoos have been around for thousands of years. They tell a story and can tell you everything about a person. I have always admired the intricate ink designs. I...Reactions0reactionsComments1 comments
Chronic Illness In Your TwentiesAs a 20-something woman, my life is expected to look a certain way. There is a certain Sex-and-the-City-esque romanticization of being in your 20’s. People think you go out partying...Reactions0reactionsComments4 comments
How I Budget Money With A Chronic IllnessAside from the physical challenges of having a chronic illness, the financial challenges are one of my biggest stressors. I am lucky to have a full-time job with great benefits...Reactions0reactionsComments2 comments
Another Year With Hidradenitis SuppurativaAs we begin 2023, I can’t help but to reflect on my past and contemplate a future, like many people do during this time. I am currently ending 2022 with...Reactions0reactionsComments0 comments
Holiday Gifts For Your Loved One With Hidradenitis SuppurativaChristmas, Hanukkah, and the holiday season in general is a wonderful time of year – for most. However, when living with a chronic illness, specifically hidradenitis suppurativa (HS), the holiday...Reactions0reactionsComments0 comments
Making Health DecisionsIt feels like every time I go to the doctor, they want to make a change to my care. Every change strikes fear and anxiety. Will this new medication affect...Reactions0reactionsComments0 comments
Therapy and Chronic IllnessYou either hate or love therapy. Some days, it’s both. I have been in therapy off and on for 9 years, and recently, I found that therapy can be a...Reactions0reactionsComments1 comments
HS and STIs: Dealing with StigmaContent warning: This article includes mentions sexual assault. When I was around 13 years old, I was the victim of an attempted sexual assault. Ironically enough, my HS symptoms began...Reactions0reactionsComments0 comments
Hidradenitis Suppurativa at WorkThe COVID-19 pandemic shifted my perspective about HS and my job. I work in a court with four day workweeks, 10 hour days. When the pandemic shut down society as...Reactions0reactionsComments1 comments
Getting Rejected Because Of My HSRecently, I went on a first date. Now for some people this isn't huge news. But for me, it was BIG. I am not embarrassed to say that it has...Reactions0reactionsComments2 comments
Getting an Inflectra (Remicade) InfusionStarting a new medication always makes me anxious. When my Humira stopped being effective for me, my doctor recommended we begin Inflectra (the equivalent to Remicade). I was not sure...Reactions0reactionsComments0 comments
Getting Another Diagnosis with HSHS is a grueling disease that has taught me so much. I was diagnosed when I was 17 years old and will soon be 27. Coming up on the 10...Reactions0reactionsComments0 comments
Hustle Culture and HS“You have as many hours in a day as Beyoncé” “Rise and Grind” “Sleep is for the weak” How many of us have heard this as ‘inspirational’ advice on social...Reactions0reactionsComments0 comments
The Mental Labor of Chronic IllnessWhen I was 17 years old, I got my HS diagnosis after 4 years of painful, recurring abscesses. Little did I know this would be the beginning of a lifelong...Reactions0reactionsComments0 comments
