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What is something you wish others knew about HS?

  1. I have tried all the doctor prescribed creams, washes and pills. I found this stuff. I originally got it for preventative measures when I shave, BUT it has turned into a God's send!! The pain goes away fast, the bumps just go away and NO scarring, usually. It works wonderful to me. I bought 6 bottles to make sure I have a stock if they stop selling it for some reason. Try a bottle, it might be wonderful for you also!!

    Evagloss Bumps Solution- After Shave Repair Serum for Ingrowns and Burns, Dark Spot Corrector Skin Lightening, Roll-On for Men and Women -100g
    Evagloss Bumps Solution- After Shave Repair Serum for Ingrowns and Burns, Dark Spot Corrector Skin Lightening, Roll-On for Men and Women -100g

    1. My husband has HS. I...just want everyone with HS to know that the ability to find someone who will love you with your limitations and ability to do or not do something is a very real one. I actually met my husband when we were friends and I visited him in the hospital. When we started dating he had a large scar across the back of his neck that he was extremely ashamed of. When I asked what it was I could see on his face he thought I was going to be disgusted. But I listened. I learned what it meant to live his life. As we have been married the last 3 years we have been trying different treatments for his HS and I have gotten really good at bandaging his wounds. What I'm saying is, don't lose hope in good things happening to you simply because you have HS and also if you have an understanding partner, be patient with them and allow them to help you and learn about your struggles. It will make your life easier!

      1. what a wonderful message! Thank you so very much for sharing your and your husband's story with our community here. It sounds like you have a special relationship. Sending you both gentle hugs. -- Warmly, Christine (Team Member)

    2. I was diagnosed with this a few years ago but suffering for many years. Many Drs later and doing everything I've been told to do, nothing seems to help. I've had so many surgeries that I look like a patchwork quilt! It's so frustrating that there isn't more research done on HS. It's a disease that most suffer with in silence, myself included. It's painful, embarrassing and down right mentally and physically exhausting. I get them from pea size to softball size. Just a neverending battle with no answers.

      1. I've never had them softball size, that's horrible. Do u notice when it's hot out & u sweat it irrigate them more?

      2. Yes on the lower half of my body but the biggest one I had was in Winter and it was on my back. Some of the treatments my derm wanted to try we're not covered by insurance because it's considered cosmetic, which makes it even more frustrating 😵‍💫

    3. I wish others knew how difficult it is to get up out of bed regardless if you have an active flare or not.

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