Who is your most supportive person when you are dealing with HS?

, although I'm sorry you haven't had people who have offered you support, it sounds like you are doing a great job working on taking care of yourself. Getting educated and resting when you need to are both such important part of the living with a chronic condition. Good for you! While I know it isn't the same as having those people physically around you offer support, please know that this community is here for you. Please reach out if you have questions, need to vent, or could use some support! Are you currently on a treatment? Or do you have a dermatologist that you're working with? Sending you gentle hugs. -- Warmly, Christine (Team Member)

No I'm not currently on a treatment or seeing a Dermatologist. I have in the past for a completely different issue. But not for HS. I'm just trying to navigate through this like everybody else. I do know I have issues with some antibiotics as some have gave me side effects in the past. I have recently changed up my diet like alot of people are doing cause I do have trigger foods. I'm also trying different supplements to see what may work. I've had to put up boundaries in the past to get the stress down. Been in Solitude for so long it eventually gets old. But reading the stories and information does make me feel not so alone.

Hi . So glad to hear that you have such a good support network. Do you mind if I ask if there was anything in particular you said/did to introduce them to HS? Best, Richard (Team Member)

I wasn't present, but I knew someone who was.

Hi , your fears and concerns are so understandable and valid, and one that a lot of our community members can relate to and have also had. It's hard to be vulnerable and open up to someone, especially with something they might not fully understand. We really appreciate your openness and vulnerability here that you've shared by bringing this up.


You might be interested in this article on our site about HS and intimacy, https://hsdisease.com/intimacy as well as this article about talking with your friends about HS, https://hsdisease.com/living/telling-friends. The article itself is not necessarily talking about a relationship wants to be physical in, but it still has some information about how to talk with someone about HS which you might find helpful.


Please know that you are not alone! This community is here to support you, so don't hesitate to reach out.


Sending you gentle hugs. -- Warmly, Christine (Team Member)

Hello, Emma! They both sound wonderful! Wishing all of you the very best! ~Chelsea (Team Member)

I show no one except my Dr.