Who is your most supportive person when you are dealing with HS?
Do you have at least one person to lean on when you are having a bad symptom day? How do they help get you through the rough times?
Yes, my friend always listens and offers comfort.
Their support and understanding make a huge difference on tough days, reminding me I'm not alone.Hi
. So glad to hear that you have such a good support network. Do you mind if I ask if there was anything in particular you said/did to introduce them to HS? Best, Richard (Team Member) I wasn't present, but I knew someone who was.
Hello, I haven’t shown anyone and I don’t know to approach the conversation with someone I would like to be intimate with. I’m afraid they will be disgusted.
Hi
, your fears and concerns are so understandable and valid, and one that a lot of our community members can relate to and have also had. It's hard to be vulnerable and open up to someone, especially with something they might not fully understand. We really appreciate your openness and vulnerability here that you've shared by bringing this up.
You might be interested in this article on our site about HS and intimacy, https://hsdisease.com/intimacy as well as this article about talking with your friends about HS, https://hsdisease.com/living/telling-friends. The article itself is not necessarily talking about a relationship wants to be physical in, but it still has some information about how to talk with someone about HS which you might find helpful.
Please know that you are not alone! This community is here to support you, so don't hesitate to reach out.
Sending you gentle hugs. -- Warmly, Christine (Team Member)
My mam has been by my side every appointment since i was 16 im 23 now and she is my rock. My gorgeous boyfriend helps so much when im having mobility issues and was my saviour after my major surgery
Hello, Emma! They both sound wonderful! Wishing all of you the very best! ~Chelsea (Team Member) I show no one except my Dr.
I would be lost without the endless support I receive from my mother and sister.
Hi Joey! That support means the world! Thanks for sharing, they sound like very big-hearted ladies! ~Chelsea (Team Member)
