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I Cured My Lifelong HS

I’m now 53 and have just recently stumbled on HS and started reading it and it was a true revelation.. This was the answer to the biggest mystery of my life, what is causing these huge cysts I’ve had in the strangest places since I was a teenager.. I had been to probably 6 different dermatologist in the beginning, even went to Johns Hopkins trying to get this “cystic acne” cured.. I have taken every antibiotic imaginable, even took accutane, nothing worked.. Eventually I just learned to live with it..

Well I’m writing this to tell anyone suffering as I suffered, I believe I have found the true cause and the true cure.. I never found out about HS until AFTER mine seems to have completely retreated over the past almost three years now… What happened was I decided to quit sugar and anything with high fructose corn syrup for weight loss purposes.. I’m not fat, 6’0” and 197, but wanted to slim down and giving up basically anything and everything sweet was my gameplan… I also switched over to drinking nothing but water… I have stuck to it religiously,gotten completely used to it… My HS slowly started to just go away, I noticed my skin all over went from oily to very dry.. I no longer was getting new breakouts anywhere, not on my face or back or groin area.. The cysts that you could not see but could feel deep under the skin all gradually shrank and went away… My skin is the healthiest its been since before I was a teenager.

Frankly, I really wasn’t expecting all the benefits those simple changes to my diet and what I drink made in how I look and even how I feel…. I think the cure is simple, jusr eliminate sugar and corn based sweetners, and only drink water… Basically I have concluded without any shadow of a doubt in my mind, my HS was an allergic reaction to sugar and high fructose corn syrup …. Makes sense, I ate sweets everyday, drank nothing but regular soda, not in crazy binge like excess, but I’d think nothing of eating a donut or cinnamon bun or ice cream, or cake, or whatever I wanted….

I could write a damn book about all I went through and silently endured for 40 years of my life.. I want my discovery to help others get their HS cured too and feel compelled to tell everyone I can find with this disease how to get rid of it and get better… Real simple, drink only water and water only and no sugar or high fructose corn syrup, no sweets.. Fruits are okay, they don’t affect my HS…. Hope this helps someone, anyone…

  1. For comfort that seems to work if you have a painful ONE. I have found taking a bandage and put baking soda and water on it. I sometimes have to do this for a few days. But in a lot of cases it soaks up the pain causing side of HS in one day. Hope it helps.

    1. Great tip! Thanks for sharing. - Lori (Team Member)

    2. Look this up guys on YouTube KenDberryMD


      7 skin signs of insulin resistance

      It has HS in the video and other signs of
      hyperinsulinemia. I get my A1C and glucose checked every quarter and always fine, but those may not show the issue giving you the appearance of being fine.

      There are two other tests I am going to have run besides A1C and glucose.

      Fasting cerum and c-peptide.

      Seems to be a problem with Yeast and suger (carbs)

  2. I believe this is true had cysts but later in life turned to HS. Who knows may have been HS all along. HS is painful unlike cyst pain. Here is why I believe it is sugar based. Whenever I ate two donuts I would have a breakout. It would be like the next day.

    1. Hi . Have you tried eliminating sugar or highly processed carbohydrates from your diet? If so, have you noticed a difference? Thanks for joining the conversation. Best wishes. - Lori (Team Member)

    2. I have a problem, that I love carbs. I going to try and get off sodas and treats completely. But bread is my kryptonite, I can only cut back to a point on bread. For me I have been pretty much event free for years now. Minor events are taken out with baking soda pretty quickly for me. I didnt know how bad some folks in here have it.

  3. Just my opinion I've been struggling with hs my love g life (now 6😎 and I've been to so many terms I will guy this They Suck!

    1. so sorry to hear you can understand the pain and frustration of HS. It sounds like you might try giving some of these dietary suggestions a try. Have you ever made dietary changes to try to manage your symptoms before?

      I hope it's okay, but I wanted to share a couple links to articles about HS and diet. This one has an overview of types of diets as treatments for HS, https://hsdisease.com/diet. This article goes into more detail about anti-inflammatory diet, https://hsdisease.com/clinical/anti-inflammatory-diet. And in this article one of our members wrote about her experience starting a new diet to help manage her symptoms, https://hsdisease.com/living/autoimmune-protocol-diet.

      Please, if you're comfortable, let us know how it goes. Wishing you a gentle day! -- Warmly, Christine (Team Member)

  4. Thank you for sharing. My 23yr old son has HS really bad. Nothing seems to help. Hopefully trying your suggestion will help.

    1. Hi , I'm so sorry to hear about your son. It can be painful to watch a child deal with a chronic condition like HS, especially when nothing seems to help. What a supportive parent to be seeking out information for him. Is your son working with a dermatologist for his HS?

      Many people with HS do find that certain foods trigger flare ups. Has your son noticed any dietary triggers? One of our advocates wrote about her experience with an elimination diet and noticing some triggers in this article, https://hsdisease.com/living/elimination-diet. Also, these article has some general information about HS diet, https://hsdisease.com/diet, and this one goes into specifics about an anti-inflammatory diet, https://hsdisease.com/clinical/anti-inflammatory-diet

      Please don't hesitate to reach out here any time, whether you have questions or could use some support.

      -- Warmly, Christine (Team Member)

    2. Suger like what they use in donuts causes mine for sure 100%. Also to help with pain I soak a bandage with water and baking soda and let it sit on wound for 24 hours or a few days and do it again every day. It is surprising how fast pain stops

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