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These are some things that have worked for me (or that have at least seemed not to cause any flare ups)

Related details about my HS: I was diagnosed around 1.5 months ago. Before I was diagnosed, I was not using any of these things. I had decided to go to the dermatologist because I had been having constantly present, mild but painful and draining lumps under my arms for about a month. Once they told me I had HS, I learned about what it is and then started using all these things. In the 1.5 months since then, I have only had 1 flare up consisting of one lump on one arm. It did not get large enough to open and it disappeared on its own. It was also not very noticeably painful. The rest of the time, there have been no lumps anywhere. I still have the scars from flare ups I had before being diagnosed, but otherwise my arms are good now. Maybe I just am very lucky and have a very mild case or maybe these things could also help other people. I did go back to the dermatologist today to make sure that I do actually have HS and their opinion is that I do. I don’t want to make anyone think that any of these things will make their HS much better, but I wanted to suggest what works for me in case people are looking for things to try.

Pit Liquor. This is a deodorant which I have found that works well for eliminating smell and seems not to irritate my HS. I tried Lume before but did not like the smell at all. This deodorant comes in a spray form and uses high proof alcohol as a way to kill odor producing germs. I use and like the smell of the Bourbon vanilla one they have. It doesn’t last all day like normal deodorant but that’s fine for me because I can just cary the small bottle with me and spray it on a second time at lunch.

Turmeric supplement. I take 2 of these pills every day. The name on Amazon is (Sports Research Turmeric Curcumin C3 Complex 500 mg, Enhanced with Black Pepper and Organic Coconut Oil for Better Absorption, Non-GMO and Gluten Free).

Hibiclens and Cerave benzoyl peroxide 4% alternating daily.

My dermatologist prescribed me clindamycin foam which I apply every night before bed.

I have stopped eating any dairy, yeast, gluten, nightshades, and have stuck to a Mediterranean style diet.

If you have any questions or critical feedback, I’m very open to hearing it!

  1. Wow, , thank you so much for sharing with the community here. (And I apologize that I am only just now seeing your comment here from earlier this month.) I'm so very glad to hear that you've been able to find some things that help keep your HS symptoms mild, and that even with your most recent flare it was manageable. Hopefully our community members here see your tips and tricks and what has been helpful for you! Thanks for being a part of our community and sharing so openly. If you're interested, you can also share your story over on our stories page, https://hsdisease.com/stories. Wishing you a gentle day. -- Warmly, Christine (Team Member)

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