Hello, , and welcome! I'm so glad you've joined our community here and have reached out. We really appreciate your vulnerability. I do hope some of our community members who've also experienced HS in less common places find your forum here and can share with you. In the meantime I want to share a couple of articles with you. In this one, our advocate Kathryn writes about her experience with HS on the back, https://hsdisease.com/living/unusual-flares. And in this article, Jasmine talks about the fears of having HS flare up on visual places on the body like the face, https://hsdisease.com/living/wish-people-knew. I really wish that you weren't suffering so badly around your whole body, but I do hope that our community here can help you feel less alone and more supported. Are you also working with a doctor to treat your HS? Please reach out here any time! -- Warmly, Christine (Team Member)