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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

How do you emotionally cope with HS flare-ups and body image issues?

Hi everyone, I’ve been living with HS for a while, and one of the most difficult parts for me isn’t just the physical pain — it’s the emotional toll it...

New to site

Hi...I've been suffering with this since late teens, I'm now 52. Until recently I didn't even know this was an actual medical condition even though I been to the gp...

Exploring our options with HS

Hello all! First, I'm wishing everyone the best possible day. I know we sometimes have good days or even a part of the day that's good and I want us...

I’ve finally outgrown HS

I was 20 years old when I got my first boil. It was a doozy. About as big as 3 golf balls. Went to doctors for about 5+ years- no...

pain management/medication options

i have level 1-2 and all the doctors/dermatologists will do for me is antibiotics and creams which sometimes don’t work and take a while. is there any pain medication i...

Feeling severly ill

Hello. I am 44 and have not been diagnosed but i started getting bumps on my head at 18 while in the military. Now i have cysts or boils in...

Featured

Who is your most supportive person when you are dealing with HS?

Do you have at least one person to lean on when you are having a bad symptom day? How do they help get you through the rough times?...

Where does everybody suffer?

So I have been suffering badly around my whole body, but it would be nice to see if others suffer in certain places such as the face and back. As...

HS and bras

Hello everyone I am new here. Although I've been living with this for years, I was only diagnosed recently. Depression is starting to set in because of having to wear...

Dapsone - what to expect/testimonies?

Hi all, I started Dapsone 50mg daily about 2 and a half weeks ago now and I'm not noticing anything different. I thought maybe my HS was improving slightly but...

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