Missteps and Misdiagnoses (Part 1)I first noticed it in May of my senior year of high school. A small, purple-ish, veiny bump had emerged from my right armpit. It was squarely in the middle...reactions1comment
The Mental Labor of Chronic IllnessWhen I was 17 years old, I got my HS diagnosis after 4 years of painful, recurring abscesses. Little did I know this would be the beginning of a lifelong...reactionscomments
What Do Food Labels Mean?A food label can tell you a lot about what you are eating. It shows the number of calories and serving sizes of different foods and provides a breakdown of...reactionscomments
Friendships & HS (Part 1)How do you talk about what we go through with friends and family? How has HS affected your relationship and friendships? Has hidradenitis suppurativa impacted your personal relationships? As someone...reactions1comment
Painsomnia: How To Build A Healthy Sleep Routine Around The Pain of HSYou’ve probably been there: Tossing and turning, desperate for sleep but in too much pain to do so. Sleep hygiene is an important part of physical and mental health, but...reactions1comment
Where Do I Start? How to Share Your Hidradenitis Suppurativa Story"I want to share my story but don't know how to start." If this sounds like you, you are not alone. We have heard people in the hidradenitis suppurativa (HS)...reactions3comments
Lessons From the Hidradenitis Suppurativa In America Survey: Quality of Life ImpactHidradenitis suppurativa (HS) is a misunderstood and misdiagnosed condition that greatly affects those who have it. HS symptoms can be difficult to manage, painful, and embarrassing. We asked about day-to-day...reactionscomments
Stepping Out Of My Comfort Zone: Isela's Journey With Hidradenitis SuppurativaThe Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Isela, and she shared how important it is...reactionscomments
A Quick Update!Why hello! It’s been a while since I gave an update on my Hidradenitis Suppurativa so I thought I would take the time to explain what’s been going on with...reactions2comments
Ask the Advocate: Community & AdvocacyFinding community has been a source of strength and inspiration for so many folks with hidradenitis suppurativa (HS). Finally, a space where we speak the same language, people get what...reactionscomments
Letting Go Of Shame: Alice's Journey Opening Up About Her HSThe Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Alice, and she shared how she's learned to...reactionscomments
Dietary Restrictions and Disordered Eating: What You Need to Know (Part 2)Please note: This article mentions eating disorders and restrictive eating. If you struggle with an eating disorder, please reach out for help. You deserve support and healing, and I promise...reactionscomments
Ask the Advocate: Wound Care & Home RemediesManaging hidradenitis suppurativa (HS) wounds can be challenging. What might work for one HS warrior might not work for another. It is a balancing act that takes patience, perseverance, and...reactionscomments
Embracing Vulnerability: Kristen's Journey To Find Her "New Normal"The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Kristen, and she shared how she manages her...reactionscomments
Red Flags in Healthcare Providers: When Do I Say 'No?'Twelve years ago, I was diagnosed with Hidradenitis Suppurativa. In those years, I have seen six dermatologists, five primary care physicians, and countless other nurses and medical practitioners. Through experience...reactions1comment
Pomegranate SpritzerThe heat is here and that means we all could use something refreshing to cool us down. As HS patients I know we have to sacrifice a lot of the...reactions4comments
Embracing Change: Kim's Journey With Hidradenitis SuppurativaEditor’s note: This post contains images of Kim’s open hidradenitis suppurativa boils.The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews...reactionscomments
A Real Unicorn (Doctor): Part 2In case you missed it, check out Part 1 of this series! Here is how my first visit went: we did try the topical cream, but because of one of...reactions14comments
A Real Unicorn (Doctor): Part 1Even in the rare disease world, I am rare. I have seven rare diseases, and another twelve not-so-rare diseases (and when you lump all of these together, they are comorbidities...reactions6comments
Overcoming Adversity: Hayley's Journey to AcceptanceThe Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Hayley and she shared why she has chosen...reactionscomments
