Where Do I Start? How to Share Your Hidradenitis Suppurativa Story"I want to share my story but don't know how to start." If this sounds like you, you are not alone. We have heard people in the hidradenitis suppurativa (HS)...Reactions0reactionsComments3 comments
Lessons From the Hidradenitis Suppurativa In America Survey: Quality of Life ImpactHidradenitis suppurativa (HS) is a misunderstood and misdiagnosed condition that greatly affects those who have it. HS symptoms can be difficult to manage, painful, and embarrassing. We asked about day-to-day...Reactions0reactionsComments0 comments
Stepping Out Of My Comfort Zone: Isela's Journey With Hidradenitis SuppurativaThe Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Isela, and she shared how important it is...Reactions0reactionsComments0 comments
A Quick Update!Why hello! It’s been a while since I gave an update on my Hidradenitis Suppurativa so I thought I would take the time to explain what’s been going on with...Reactions0reactionsComments2 comments
Ask the Advocate: Community & AdvocacyFinding community has been a source of strength and inspiration for so many folks with hidradenitis suppurativa (HS). Finally, a space where we speak the same language, people get what...Reactions0reactionsComments0 comments
Letting Go Of Shame: Alice's Journey Opening Up About Her HSThe Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Alice, and she shared how she's learned to...Reactions0reactionsComments0 comments
Dietary Restrictions and Disordered Eating: What You Need to Know (Part 2)Please note: This article mentions eating disorders and restrictive eating. If you struggle with an eating disorder, please reach out for help. You deserve support and healing, and I promise...Reactions0reactionsComments0 comments
Ask the Advocate: Wound Care & Home RemediesManaging hidradenitis suppurativa (HS) wounds can be challenging. What might work for one HS warrior might not work for another. It is a balancing act that takes patience, perseverance, and...Reactions0reactionsComments0 comments
Embracing Vulnerability: Kristen's Journey To Find Her "New Normal"The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Kristen, and she shared how she manages her...Reactions0reactionsComments0 comments
Red Flags in Healthcare Providers: When Do I Say 'No?'Twelve years ago, I was diagnosed with Hidradenitis Suppurativa. In those years, I have seen six dermatologists, five primary care physicians, and countless other nurses and medical practitioners. Through experience...Reactions0reactionsComments1 comments
Pomegranate SpritzerThe heat is here and that means we all could use something refreshing to cool us down. As HS patients I know we have to sacrifice a lot of the...Reactions0reactionsComments4 comments
Embracing Change: Kim's Journey With Hidradenitis SuppurativaEditor’s note: This post contains images of Kim’s open hidradenitis suppurativa boils.The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews...Reactions0reactionsComments0 comments
A Real Unicorn (Doctor): Part 2In case you missed it, check out Part 1 of this series! Here is how my first visit went: we did try the topical cream, but because of one of...Reactions0reactionsComments14 comments
A Real Unicorn (Doctor): Part 1Even in the rare disease world, I am rare. I have seven rare diseases, and another twelve not-so-rare diseases (and when you lump all of these together, they are comorbidities...Reactions0reactionsComments6 comments
Overcoming Adversity: Hayley's Journey to AcceptanceThe Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to Hayley and she shared why she has chosen...Reactions0reactionsComments0 comments
A Disease Beyond Just Flare-Ups: How HS Can Cause A Dent In RelationshipsI was in my early 20’s when I finally learned to correctly pronounce the tongue twister – Hidradenitis Suppurativa. Indeed, it was a relief to know that I had a...Reactions0reactionsComments0 comments
Dietary Restrictions and Disordered Eating: What You Need To KnowAuthor's note: This article discusses eating disorders and weight loss with a mention of pounds lost in relation to height. If you are struggling with an eating disorder, this article...Reactions0reactionsComments1 comments
How Do I Connect With Other People In The Hidradenitis Suppurativa Community?Many people with hidradenitis suppurativa (HS) have told us that it can be challenging to find other people in your community who truly understand your experiences with HS. Our goal...Reactions0reactionsComments0 comments
The Good, The Bad, & The Ugly of HS (Part 2: The Bad)Hello Beautiful People! In today's video, I'll speak about some of the many misconceptions aka "The Bad" that are associated with Hidradenitis Suppurativa. In case you missed it, check out...Reactions0reactionsComments1 comments
Well, It Does Run in Families: How I Learned that My Family Members Also Have HS“Your skin issue, are they like boils, and do you get them in your armpits?” We were standing in the kitchen of a large rental house in northern Michigan. It...Reactions0reactionsComments0 comments
