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Hidradenitis Suppurativa and the ears

Okay, so I think I've been developing a very mild case of HS in my ears or on my inner earlobe. I don't really know. All I know is when I stuck my finger in my ear the other day I pulled out a yellow crust. Now, we know what that means, pus. I don't see a wound or anything and it usually happens around my period. It never does anything more than itch a little, feel a bit inflamed for a day, and then it'll eventually crust as it did.

I say all of this to ask if anyone has experienced a version of this? I'm nervous about what this could mean. Is my HS moving to my head? I can't lie, I'm afraid.

  1. It does sound like a wild place to get HS, doesn't it?! Luckily, it's calmed down since I've been monitoring my sugar intake and getting my gut health together. I pray this only continues to improve.

    1. I have actually had HS lesions pop up on my lobes and in the outer canals of my ears. Mine can become very uncomfortable. HS is a disease of the skin, and though there are common places where the lesions appear, we really can get lesions anywhere we have skin. Just be careful about what you put in your ear canal, of course, because you don't want to add anything that will cause harm - like sharp objects, or things that will exacerbate infection. ~Chelsea (Team Member)

      1. This actually reminds me of why I can't pierce anything on my body anymore. HS literally interferes. I don't know if it would be the same now but I know when I pierced my nose and ears they would always puss up and I would have to take the piercing out because they would never heal like they should.

      2. I get it! I'm officially allergic to nickel and gold, and so I steer clear of any jewelry with any kind of metal. I don't even bother with anything that claims to be pure because it's nearly impossible to have pure metals of any kind. I had my ears pierced 38 years ago (yikes!!), and I could never get them to heal. Metal posts aren't safe enough for me. I'm sorry you have had such a hard time with your adornments! I hope you are able to find good alternatives. ~Chelsea

    2. I have it behind ears

      1. had one in earlobe too but gone. Luckily my ears are the least of my worries. It hurt at first but they don't hurt much now. I have seen a picture of a man with all over head poor guy

      2. I have a friend who had it all over his head and he had it on his legs. My heart broke for him. this disease is truly the pits!

    3. I can’t say that I’ve gotten HS in my ear, but if I was in your position, I would feel very uneasy about it as well. Nevertheless, I hope it turns out not to be the case and I wish you good health. Stay strong and we're here for you 💜

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