Rachel DiStefano
Getting a correct diagnosis can take so long. How old were you when you were officially diagnosed with hidradenitis suppurativa?
Clugs
Still waiting for an official diagnosis (they keep saying it’s foliculitus) but I’ve had bad flare ups since I was around 10. I’m 25 now and have been going to the doctors with ‘acne’ issues since I was about 13.
Isela Nataly Moderator
Chelsea Freund Moderator
Juli
I diagnosed myself 10 years ago, but have only been officially diagnosed and treated 2 years ago. I’ve been dealing with HS since my early 20s. I’m in my late 50s.
Chelsea Freund Moderator
FloridaDawn
I first started having symptoms in my late teens back in the 80's. My gynocologist told me that they were ingrown hairs and told me to use antibacterial soap and that was that. Living in New England, thankfully, I didnt have too many incidents over the years, though I had enough, including one surgical removal but still no actual diagnosis . I moved to Florida 4 years ago and of course with the heat and humidity things got much worse. I finally got an actual diagnosis at age 46( so it took about 30 years to have an actual name for it) and it has been a nightmare ever since. (Incidentally I do have other auto immune and inflammatory disorders besides the HS, so I had already been taking Methotrexate for years) Now I take Humira, Doxycycline, occasionally prednisone, as well as using multiple topical ointments, lotions and powders. Seriously considering moving back up North away from the heat and humidity.
FloridaDawn
Chelsea Freund Moderator
Maria
I was diagnosed at 16 but I had my first simptoms at 11-12. Now I'm 20.
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