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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

I Cured My Lifelong HS

I’m now 53 and have just recently stumbled on HS and started reading it and it was a true revelation.. This was the answer to the biggest mystery of my...

Hydradenitis Supertiva anyone else get it in the mouth

No I've not got anything home remedy to try and o center it puts nodules down spinal colum and neck it's a whole another level and added on top of...

Has anyone done Clindamycin and Rifamin therapy?

Hi there! I'm wondering if any of you have had success with 10 weeks of Clindamycin and Rifampin and HS remission? I just started it today. I'm not looking for...

Feeling severly ill

Hello. I am 44 and have not been diagnosed but i started getting bumps on my head at 18 while in the military. Now i have cysts or boils in...

Has anyone (UK) tried going private for treatment?

Hi there, I’m moving to the UK (Liverpool) and wondered if anyone had gone for private treatment for HS and had any joy? Thanks...

HS and chronic folliculitis?

Does anyone else suffer with both? I have really bad chronic folliculitis on my buttocks along with very painful and large HS boils and abscesses. They never go away. Anyone...

Dapsone - what to expect/testimonies?

Hi all, I started Dapsone 50mg daily about 2 and a half weeks ago now and I'm not noticing anything different. I thought maybe my HS was improving slightly but...

Hidradenitis Suppurativa Lesions and Biofilms

I'm going to include this article from the NIH; the abstract does a fairly good job of outlining why biofilms may be a real concern in trying to treat HS...

Do you think there is a stigma around HS? How can we combat that?

Let's face it, we all want to belong. No one wants to feel as if they are an outsider. It feels good to belong and as a community, what can...

Starting Humira; Any tips for self injection?

I've been prescribed Humira and to be honest I'm terrified about having to inject myself. I have a substantial fear of needles and I'm really worried about the whole experience...

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