I Love to Travel But I Do Not Love Flying: Managing Airports with HSI am writing this on my first plane ride in two years. After months of not flying due to the COVID-19 pandemic, I am flying home for a wedding. I...Reactions0reactionsComments0 comments
Rolling On With HS (Part 2): Dealing With Negativity Around Your Mobility AidsIn case you missed it, check out Part 1 of this series! Using a mobility aid for HS is probably a lot more common than you think and unfortunately, ableism...Reactions0reactionsComments0 comments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices...Reactions0reactionsComments0 comments
Low-Carb Peanut Butter Protein Packed French Toast 🍞Hello, Beautiful People. Thank you for coming by to my profile to check out my very 1st episode of Cooking With Joey. Just to give you all an idea of...Reactions0reactionsComments6 comments
Stigma and Shame: How It Has Affected My LifeAlmost four years ago, I was diagnosed with hidradenitis suppurativa, a chronic inflammatory skin condition that affects the hair follicles. Living with this skin condition was complicated because it is...Reactions0reactionsComments3 comments
Selina’s Ramblings and Oddities: First EditionHello everyone. Today I thought I would write just a blog-style article about what’s been going on with me and my Hidradenitisy (it’s an adjective, I swear) life. I entitled...Reactions0reactionsComments0 comments
Ask the Advocate: TriggersIn case you missed it, check out part 1 of this series, where we asked our advocates about their diagnosis. For so many HS warriors, finding out what triggers your...Reactions0reactionsComments0 comments
Product Review: MeUndiesIf you are like me, you are forever searching for underwear and/or pajama and lounge shorts that don’t irritate flares or cause new ones. With all sorts of styles, cuts...Reactions0reactionsComments0 comments
Your Hidradenitis Suppurativa StoryThere were so many emotions that came up for me when I began telling my Hidradenitis Suppurativa (HS) story. The main feeling was shame. It almost silenced me until one...Reactions0reactionsComments1 comments
Keto Brownie Batter Shake HackI don’t know what’s with me, but I get nauseous a lot. I know it originally was because I was on Metformin, but I haven’t taken Metformin in months. I...Reactions0reactionsComments1 comments
Getting It Done: How To Push Through Chores During A FlareIt would be lovely to be able to spend all of your flare days in bed snuggled up to a heating pad and watching your favorite movies, but life doesn’t...Reactions0reactionsComments0 comments
Things I Wish People Knew About HSHidradenitis Suppurativa is a complex disease. It presents aggressively for some patients while other patients have milder cases and remain well within that spectrum for their entire journey. Because chronic...Reactions0reactionsComments0 comments
HS and COVID-19Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"...Reactions0reactionsComments0 comments
Skin Conditions and Mental HealthWe have all heard the saying that first impressions make the most impact. What does that mean for someone with hidradenitis suppurativa who has visible symptoms on the skin? Not...Reactions0reactionsComments1 comments
Zero Carb Cheez-itsI’m really weird and I know it. It’s just easier accepting the weirdness at this point. One weird thing about me? I can eat the same thing 60 days in...Reactions0reactionsComments0 comments
My Hidradenitis Suppurativa Is Finally In RemissionThis statement is made with severe caution knowing the unpredictable nature of Hidradenitis Suppurativa, but I believe I am now heading towards remission. Unfortunately, there is no cure for HS...Reactions0reactionsComments5 comments
Chronic Illness and Burnout: Tips To Prevent and Manage Feelings of Exhaustion (Part 2)If you missed it, check out Part 1 of this series: Chronic Illness and Burnout: Recognizing the Signs. Realizing that you are experiencing feelings of burnout and taking action to...Reactions0reactionsComments1 comments
Epsom Salts: Friend or Foe?As I sit in my third hot Epsom salt bath of the day, I realized I have no idea how or why Epsom salts make a difference for HS. Is...Reactions0reactionsComments1 comments
Low-Carb Air Fryer Tortilla ChipsI’m on keto and Cinco de Mayo just passed! There’s nothing I love more than nice crispy, salty corn tortilla chips with salsa, but that’s not doable when sticking to...Reactions0reactionsComments0 comments
Books Written By HS Warriors On My Reading ListChances are if you have been living with HS and its potentially debilitating effects, you have probably sought experiences from other warriors to better understand what you are going through...Reactions0reactionsComments1 comments