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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

HS Photos

Whether you've been living with hidradenitis suppurativa for several years or you just received a diagnosis, this is a space to share photos of your HS journey. #HSWarriors 💜 ...

HS and chronic folliculitis?

Does anyone else suffer with both? I have really bad chronic folliculitis on my buttocks along with very painful and large HS boils and abscesses. They never go away. Anyone...

Dapsone - what to expect/testimonies?

Hi all, I started Dapsone 50mg daily about 2 and a half weeks ago now and I'm not noticing anything different. I thought maybe my HS was improving slightly but...

Get to the root of hs

For the first time is 8 years I am lesion free. My hs disease state was related to ingesting certain foods. I purchased a food sensitivity kit online (Everlywell) that...

Hot or Cold Compress for HS flares?

I am new to the HS world and trying to get my head around this new monster in my life. I am considered a "late in life" onset...at 46. So...

Thoughts on weather and climate affecting HS flares?

Hi all, With reading how HS can be flared by hot and humid climates/weather, I was wondering if anyone had experience living in a desert or dry/arid climate with HS?...

Humira

I started 80mg of humira today for the first time for the HS. I went to the dermatologist to have the nurse help me. Anyways indidnt feel any pinch anything...

When were you diagnosed?

How old were you diagnosed with HS?...

Hating Life

I’m having a hard time dealing with this. My “spots” are inflamed and I can’t walk. I’ve missed a week of work behind this , my birthday is tomorrow ...

How do you describe yourself?

When introducing yourself to new acquaintances in a casual setting, do you lead with your health challenges, or do you first cover your hobbies and interests?...

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