The Most Challenging Part of Hidradenitis SuppurativaRecently I was asked what is the most challenging part of living with a chronic illness. The challenges with hidradenitis suppurativa (HS) are aplenty, so I wrote a list: endless...reactions1comment
In America: What's That?The In American survey is now closed. Living with hidradenitis suppurativa (HS) can be frustrating. What can make it worse is the lack of information and research available for patients...reactions6comments
Fishing For A CureOne thing that has worked for managing my mental health dealing with HS has been the outdoors. I spent so much time in doctor's offices, emergency rooms, at home in...reactions1comment
Best Practices for Talking to Your Doctor About HS SymptomsHidradenitis suppurativa (HS) is a chronic skin condition that can present and affect people in many different ways. There is important information that a dermatology provider needs during an office...reactions6comments
Body Confidence & HS: How I Fell In Love With My Body Even When It Felt Like It Didn’t Love Me BackAs someone with a multitude of chronic illnesses, I often felt at war with my body. HS was the first chronic illness that I was diagnosed with, and as a...reactionscomments
PSA: You Are Not A Bad Person If You Have Your TriggersHello, everyone! I hope you’ve all been staying safe and healthy and having a happy and healthy 2021! For today’s episode of “Selina’s Random Hidradenitis Thoughts and Oddities,” I thought...reactionscomments
What is Psychodermatology?Psychodermatology is the study of the connection between the skin and the mind. Understanding and addressing the link between mental health and skin disorders can help to better manage them...reactionscomments
How Being Desperate for Relief From Hidradenitis Suppurativa Ruined My Womanhood (Part 2)When I put on my first pair of underwear after my surgery, I knew my life would never be the same. Uncomfortable isn't even the word to describe how I...reactions3comments
My HS Story Part One: Jasmine Ivanna EspyI was only 11-years-old when I was diagnosed with hidradenitis suppurativa. Middle school was already difficult without the addition of a chronic illness. It was difficult because I was a...reactionscomments
50 Things You Might Need to Hear If You Live with Hidradenitis SuppurativaSo here in New York it’s currently freezing and beautiful and blizzarding out (it’s a verb, I swear). I really love watching the snow but I currently can’t go stand...reactionscomments
Keto Boneless Buffalo WingsThese wings may sound like a heart attack waiting to happen, but they’re a nice occasional keto treat that I love pairing with my keto-friendly coleslaw! Any HS warriors that...reactionscomments
Three Ways to Feel Sexy with Hidradenitis SuppurativaBecause of the nature of Hidradenitis Suppurativa, whether you identify as a man or a woman in stage I, II, or III, issues with self-esteem can and probably will arise...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with hidradenitis suppurativa. New here? We invite you to explore...reactions2comments
Dear My Younger SelfWell hello there, Young Selina. This is your future self. Right now, you’re 25 years old (8 days shy of 26) and about to move into an apartment with your...reactionscomments
Life with HSI walked past this paper and pen so many times before I actually got over the fear of sharing my story living with Hidradenitis Suppurativa. For years I've been a...reactions1comment
How Being Desperate for Relief From Hidradenitis Suppurativa Ruined My Womanhood (Part 1)Living with hidradenitis suppurativa whether you identify as male or female is utterly atrocious. While some patients do experience varying degrees of the condition, the same pain, drainage, smell, open...reactions2comments
Hidradenitis Selina and The Tale of the Doctor that Probably Shouldn’t be a DoctorIt’s not a secret that I’ve had Hidradenitis for a long time, and over this period of time, I’ve compiled a doosey of stories about living with it and dealing...reactions3comments
Why I Tackle Bloody Sheets Without Conventional Laundry DetergentsI cannot count the number of times I have woken up to bloody sheets. The first few times it happened, I have to admit that I was a little perturbed...reactionscomments
5 Self Care Tips for Patients with Hidradenitis SuppurativaSelf-care is important no matter who you are but having a chronic illness means taking extra steps to ensure you're taken care of due to the toll it may have...reactionscomments
Simplifying Shower Time for the HS SpoonieLiving with a chronic illness can make everyday activities complicated—even when having set supports in place. From dealing with the hassle of slippery soap bottles, lengthy hair washing sessions, and...reactionscomments