Talking With Professors About HS...Let’s face it, most people don’t know what hidradenitis suppurativa is unless they have personally experienced it or have met someone else who has it. When you tell a new...Reactions0reactionsComments1 comments
What is Medical PTSD?...Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a soldier returning from war or a victim of...Reactions0reactionsComments1 comments
Dismissed and Denied...I had my first boil on my bikini line when I was 19. I was very skinny, fit, and healthy. I went into the walk-in clinic for it where they...Reactions0reactionsComments2 comments
Items I Keep In My HS Bugout Bag...Hello beautiful people! In todays video, I’ll be sharing some of my favorite items that I keep in my HS Bugout Bag. Please feel free to leave some comments and...Reactions0reactionsComments4 comments
Do you consider HS a part of your identity?...The answer for me is yes. What about you??...Reactions0reactionsComments5 repliesCopingMental Health
Allergic to Humira...My doc is trying off label treatment. I'm trying Otezla now. Anyone else with HS tried this and any results???...Reactions0reactionsComments0 repliesTreatment
Pilonidal Cyst – The Butt Kicker...Let me just start this by saying I’m not a trucker (otherwise known as a lorry driver in the UK). I can’t drive a manual transmission at all, and I...Reactions0reactionsComments0 comments
Mixed Sprouts Dry Curry...Every Sunday, I would relish a bowl full of Khichadi, a one-pot dish made with rice and lentils accompanied by pickle and curd for lunch. But after I was diagnosed...Reactions0reactionsComments0 comments
Loving the Summer Again...I was grateful when for college, I moved to a city that had a very long winter, as opposed to somewhere like Miami, where I would be forced to shed the...Reactions0reactionsComments1 comments
Upper Arm Numbness & Pain...Hi, I have had HS since I was 13/14 and was diagnosed when I was 17. I’ve always had pain but recently for the past few months my right upper...Reactions0reactionsComments1 repliesPainSleepFlares
The Invisibility of Pain...Some people with hidradenitis suppurativa are able to manage their pain using over-the-counter or prescription pain medicines, but many others are not. Sometimes, pain cannot be fully controlled by medicine...Reactions0reactionsComments7 comments
Thoughts on HS treatments...Hi guys, I am completely new to this forum, sat typing this at 1am as I don’t know what else to do. My name is Cat, I was diagnosed about...Reactions0reactionsComments4 repliesTreatmentTips & Advice
The Obesity Bias: How Doctors Dismiss People Who Are Overweight...If you go to the doctor for a health issue or concern, or because you are in pain, you would expect a thorough exam to get to the root cause...Reactions0reactionsComments0 comments
Tiredness and HS?...Hi all, I've been struggling with chronic fatigue ever since puberty, around the time when the HS started. I've had all tests done and nothing has ever come back explaining...Reactions0reactionsComments3 repliesTips & AdviceSleepSide Effects
Stigma Surrounding HS...In this video, Chaz discusses the stigma around hidradenitis suppurativa and share why he tries to combat it. Chaz believes that HS Warriors, their community, and their medical teams can...Reactions0reactionsComments1 comments
Warm Hug Apple Cake...I have been experimenting lately with alternative ingredients. Well, an alternative to me - I grew up with old-fashioned wheat flour, full butter, eggs from the chickens outside, you get...Reactions0reactionsComments3 comments
Living with HS...I have been living with HS since 2007. The first one started out at the base of the tail bone then it was surgically removed. After that it kept spreading...Reactions0reactionsComments0 comments
How fast it the condition developing? How to stop it?...Hey, I cannot see any doctor for the next week and I try to self diagnose. I got my first armpit bump a few months ago and then it become...Reactions0reactionsComments1 repliesDiagnosis
General Mental Health Resources...Living with a mental health condition may pose many challenges. It requires coping, finding treatment, and managing the impact of the condition on family, friendships, and work. Stigma can make...
Getting an Inflectra (Remicade) Infusion...Starting a new medication always makes me anxious. When my Humira stopped being effective for me, my doctor recommended we begin Inflectra (the equivalent to Remicade). I was not sure...Reactions0reactionsComments0 comments
