19 Years of HS...I got diagnosed by a wonderful ob-gyn at 18. I've lived with stage 3 and both sides of the groin and have only been lanced once. I have recently been...reactions1comment
I Get Hidradenitis Suppurativa Imposter Syndrome...Sometimes it’s really hard for me to write articles for HSDisease.com and to make memes for my Instagram page, @hidradenitis.selina. I get what I like to call “Hidradenitis Suppurativa Imposter...reactions8comments
My HS Journey...I first started experiencing symptoms of hidradenitis suppurativa around the age of 12. I'm now 32. It was very painful and confusing, especially since I get it on my groin...reactions2comments
Living With Hidradenitis Suppurativa...My name is Danielle Hall aka Passion The Lioness. I was diagnosed with Hidradenitis Suppurativa (HS) when I was 18 years old. I am now 32 years old. I used...reactions1comment
Never will be cured :(...Began at 23 with groin area lesions. Went away until my forties and then started in the groin area again and also this time in my buttocks. Then in my...reactions3comments
Living with HS (Part 2)...I am on 2 forms of antibiotics. 1 was for 14 days for a major bacteria, and the other I have to take every day of my life. The antibiotics...reactionscomments
Hidradenitis Suppurativa and Healthcare Provider Relationships...We recently conducted the 2021 Hidradenitis Suppurativa (HS) In America Survey. A total of 438 people with HS completed the survey. One thing we wanted to understand was how they...reactionscomments
Flares in Unusual Places: Yes, HS Can Occur On The Back!...I have had hidradenitis suppurativa for 19 years. For most of those years, I have been able to hide my HS with my clothes. This is because my HS occurred...reactions2comments
HS Awareness Week 2022: HS Is More Than Boils...Hidradenitis Suppurativa Awareness Week is here, and we’re thrilled to have you join us to bring more awareness to HS. We know HS is so much more than “just boils”...reactionscomments
Distracting yourself from pain during a flare 💜...How do you distract yourself from the pain during an HS flare? Comment below!...reactions51repliesFlaresPain
Our Foray Into Ayurveda...It’s true that Ayurveda (meaning the science of life) is a health care system that lays emphasis on how one can eliminate the root cause of a disease rather than...reactions1comment
Walking With HS (Part 2)...In this video, I define what walking with HS means to me and how my particular journey has been unique. I encouraged viewers and fellow HS Warriors to share their...reactionscomments
Recipe for Art - Plastic Cup Suncatchers...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art can help us to process our feelings...reactionscomments
Talking With Professors About HS...Let’s face it, most people don’t know what hidradenitis suppurativa is unless they have personally experienced it or have met someone else who has it. When you tell a new...reactions1comment
What is Medical PTSD?...Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a soldier returning from war or a victim of...reactions1comment
Dismissed and Denied...I had my first boil on my bikini line when I was 19. I was very skinny, fit, and healthy. I went into the walk-in clinic for it where they...reactions2comments
Items I Keep In My HS Bugout Bag...Hello beautiful people! In todays video, I’ll be sharing some of my favorite items that I keep in my HS Bugout Bag. Please feel free to leave some comments and...reactions4comments
Do you consider HS a part of your identity?...The answer for me is yes. What about you??...reactions5repliesCopingMental Health
Allergic to Humira...My doc is trying off label treatment. I'm trying Otezla now. Anyone else with HS tried this and any results???...reactionsrepliesTreatment
Pilonidal Cyst – The Butt Kicker...Let me just start this by saying I’m not a trucker (otherwise known as a lorry driver in the UK). I can’t drive a manual transmission at all, and I...reactionscomments
