Living with HS (Part 2)...I am on 2 forms of antibiotics. 1 was for 14 days for a major bacteria, and the other I have to take every day of my life. The antibiotics...reactionscomments
Hidradenitis Suppurativa and Healthcare Provider Relationships...We recently conducted the 2021 Hidradenitis Suppurativa (HS) In America Survey. A total of 438 people with HS completed the survey. One thing we wanted to understand was how they...reactionscomments
Flares in Unusual Places: Yes, HS Can Occur On The Back!...I have had hidradenitis suppurativa for 19 years. For most of those years, I have been able to hide my HS with my clothes. This is because my HS occurred...reactions2comments
HS Awareness Week 2022: HS Is More Than Boils...Hidradenitis Suppurativa Awareness Week is here, and we’re thrilled to have you join us to bring more awareness to HS. We know HS is so much more than “just boils”...reactionscomments
Distracting yourself from pain during a flare 💜...How do you distract yourself from the pain during an HS flare? Comment below!...reactions51repliesFlaresPain
Our Foray Into Ayurveda...It’s true that Ayurveda (meaning the science of life) is a health care system that lays emphasis on how one can eliminate the root cause of a disease rather than...reactions1comment
Walking With HS (Part 2)...In this video, I define what walking with HS means to me and how my particular journey has been unique. I encouraged viewers and fellow HS Warriors to share their...reactionscomments
Recipe for Art - Plastic Cup Suncatchers...Sometimes during a flare or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art can help us to process our feelings...reactionscomments
Talking With Professors About HS...Let’s face it, most people don’t know what hidradenitis suppurativa is unless they have personally experienced it or have met someone else who has it. When you tell a new...reactions1comment
What is Medical PTSD?...Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a soldier returning from war or a victim of...reactions1comment
Dismissed and Denied...I had my first boil on my bikini line when I was 19. I was very skinny, fit, and healthy. I went into the walk-in clinic for it where they...reactions2comments
Items I Keep In My HS Bugout Bag...Hello beautiful people! In todays video, I’ll be sharing some of my favorite items that I keep in my HS Bugout Bag. Please feel free to leave some comments and...reactions4comments
Do you consider HS a part of your identity?...The answer for me is yes. What about you??...reactions5repliesMental HealthCoping
Allergic to Humira...My doc is trying off label treatment. I'm trying Otezla now. Anyone else with HS tried this and any results???...reactionsrepliesTreatment
Pilonidal Cyst – The Butt Kicker...Let me just start this by saying I’m not a trucker (otherwise known as a lorry driver in the UK). I can’t drive a manual transmission at all, and I...reactionscomments
Mixed Sprouts Dry Curry...Every Sunday, I would relish a bowl full of Khichadi, a one-pot dish made with rice and lentils accompanied by pickle and curd for lunch. But after I was diagnosed...reactionscomments
Loving the Summer Again...I was grateful when for college, I moved to a city that had a very long winter, as opposed to somewhere like Miami, where I would be forced to shed the...reactions1comment
Upper Arm Numbness & Pain...Hi, I have had HS since I was 13/14 and was diagnosed when I was 17. I’ve always had pain but recently for the past few months my right upper...reactions1replyPainFlaresSleep
The Invisibility of Pain...Some people with hidradenitis suppurativa are able to manage their pain using over-the-counter or prescription pain medicines, but many others are not. Sometimes, pain cannot be fully controlled by medicine...reactions7comments
Thoughts on HS treatments...Hi guys, I am completely new to this forum, sat typing this at 1am as I don’t know what else to do. My name is Cat, I was diagnosed about...reactions4repliesTips & AdviceTreatment
