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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

Weird scar?

I had a small one in groin area two years ago. It was right where the elastic part of my underwear were on inner thigh/groin area. I used heat compress...

Managing college with HS..

Hi guys! Rebecca here. I’ve recently enrolled in college as a mature student. I’m wondering does anyone have any tips for managing school life with HS? I’d love to hear...

Hidradenitis Suppurativa Lesions and Biofilms

I'm going to include this article from the NIH; the abstract does a fairly good job of outlining why biofilms may be a real concern in trying to treat HS...

Talking to friends about HS

I have been realising recently that I tend to downplay my symptoms to my friends & family as I don’t like letting them down when I cancel plans? Anyone else...

Do you resonate with the term 'rare disease' ?

Too many people live in silence with hidradenitis suppurativa that is grossly underreported and misdiagnosed. Not too long ago, hidradenitis suppurativa was considered a rare disease. We want to know:...

Thread of Positivity: Show me your pets!

I wanted to start a thread of positivity so people who were feeling down had somewhere to go to cheer themselves up. Show me the adorable creatures who help you...

Surgery

Surgery of any kind can bring on a host of emotions. Have you had surgery? What did you experience? Are you considering surgery and looking for tips from others who...

Body Image

I've been struggling a lot lately with accepting my body as it is now. Of course, I have an idea of all the surgeries I want to have to get...

Chaga mushroom?

I was just wondering, does anyone have any personal experience using chaga mushroom for their inflammation? It comes in tea, powder, and pill form, and I was wondering if anyone...

How do you plan to beat the heat this summer?

Warmer weather is complicated for those living with HS. While we may want to enjoy the warmer months, heat can trigger flares. What are your go-to tips and tricks to...

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