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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

IPL Success

I’ve had HS since around age 11 (now 16). I have tried antibiotics - didn’t work; AIP diet- made me extremely weak + using antibacterial washes etc. none of these...

Nursing Mothers and Topical Treatments

In various patient groups, I see a lot of discussion regarding what might be safe for nursing moms to use for flares, either open or closed. One of the most...

HS worse after pregnancy

Hi All, I was recently diagnosed with HS, my flare ups tend to happen under and on the sides of my breast, but I also get flare ups between my...

HS-Friendly Products

If you were to put together the perfect care package for an HS Warrior, what comforting and practical items and products would you include?...

Dealing with the physical and mental toll

I am looking for some support. I've had hs for 15 years but only got diagnosed and treated for about 6 months now. I have severe anxiety and depression....

Weird scar?

I had a small one in groin area two years ago. It was right where the elastic part of my underwear were on inner thigh/groin area. I used heat compress...

Managing college with HS..

Hi guys! Rebecca here. I’ve recently enrolled in college as a mature student. I’m wondering does anyone have any tips for managing school life with HS? I’d love to hear...

Hidradenitis Suppurativa Lesions and Biofilms

I'm going to include this article from the NIH; the abstract does a fairly good job of outlining why biofilms may be a real concern in trying to treat HS...

Talking to friends about HS

I have been realising recently that I tend to downplay my symptoms to my friends & family as I don’t like letting them down when I cancel plans? Anyone else...

Do you resonate with the term 'rare disease' ?

Too many people live in silence with hidradenitis suppurativa that is grossly underreported and misdiagnosed. Not too long ago, hidradenitis suppurativa was considered a rare disease. We want to know:...

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