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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

🚩🚩 Red Flags 🚩🚩

What are some red flags in healthcare providers?...

Grooming with HS

I’ve had HS for 17 years and grooming my pubic area has always been an issue. I can’t shave using a traditional razor, hair removal cream or wax. Due to...

Travelling with HS

Hi guys! I'm off to Germany next week and I'm wondering do any of you guys have any tips and tricks on travelling with HS?? I'd love to hear. What...

Hs in your hair and possible hair extensions.

Hi! I’m sorry if this is a silly question but I get he slightly in my scalp. Like some bumps with hurt or some scabs will form it’s not horrible...

IPL Success

I’ve had HS since around age 11 (now 16). I have tried antibiotics - didn’t work; AIP diet- made me extremely weak + using antibacterial washes etc. none of these...

Nursing Mothers and Topical Treatments

In various patient groups, I see a lot of discussion regarding what might be safe for nursing moms to use for flares, either open or closed. One of the most...

HS worse after pregnancy

Hi All, I was recently diagnosed with HS, my flare ups tend to happen under and on the sides of my breast, but I also get flare ups between my...

HS-Friendly Products

If you were to put together the perfect care package for an HS Warrior, what comforting and practical items and products would you include?...

Dealing with the physical and mental toll

I am looking for some support. I've had hs for 15 years but only got diagnosed and treated for about 6 months now. I have severe anxiety and depression....

Weird scar?

I had a small one in groin area two years ago. It was right where the elastic part of my underwear were on inner thigh/groin area. I used heat compress...

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