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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

Perhaps finally a definitive diagnosis and cure

Below is a copy of a letter I've sent to the local MD college. Please note I am not giving out medical advice here. I am only telling my own...

These are some things that have worked for me (or that have at least seemed not to cause any flare ups)

Related details about my HS: I was diagnosed around 1.5 months ago. Before I was diagnosed, I was not using any of these things. I had decided to go to...

Found a relief solution - thank goodness!

Hi all, New here, but today I just figured out a treatment that surpassed everything I've tried for the past 20 years. Benzoyl Peroxide Yes...zit cream. Rub it on the...

How I manage my symptoms. (It has worked very well for 10 years now)

My doctors misdiagnosed my condition for most of my adult life. It had progressed to stage II while I was still in my 20's and flare-ups became quite regular. It...

HS and chronic folliculitis?

Does anyone else suffer with both? I have really bad chronic folliculitis on my buttocks along with very painful and large HS boils and abscesses. They never go away. Anyone...

Dapsone - what to expect/testimonies?

Hi all, I started Dapsone 50mg daily about 2 and a half weeks ago now and I'm not noticing anything different. I thought maybe my HS was improving slightly but...

Hot or Cold Compress for HS flares?

I am new to the HS world and trying to get my head around this new monster in my life. I am considered a "late in life" onset...at 46. So...

Medical Trauma

Has anyone researched ways to connect back to the body after medical trauma? I wonder how the research could help HS patients especially because we deal with medical trauma sometimes...

Bariatric Surgery for HS?

Hi All, I have had chronic HS since my early 20s with little to no reprieve. Constant flare ups, genetic prolonged QTs and fibromyalgia make me unable to exercise regularly...

sore fingers and toes acitretin

anyone else got or heard of sore lumps next to their nails after starting acitretin?...

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