Best Practices for Talking to Your Doctor About HS Symptoms...Hidradenitis suppurativa (HS) is a chronic skin condition that can present and affect people in many different ways. There is important information that a dermatology provider needs during an office...reactions6comments
Body Confidence & HS: How I Fell In Love With My Body Even When It Felt Like It Didn’t Love Me Back...As someone with a multitude of chronic illnesses, I often felt at war with my body. HS was the first chronic illness that I was diagnosed with, and as a...reactionscomments
PSA: You Are Not A Bad Person If You Have Your Triggers...Hello, everyone! I hope you’ve all been staying safe and healthy and having a happy and healthy 2021! For today’s episode of “Selina’s Random Hidradenitis Thoughts and Oddities,” I thought...reactionscomments
What is Psychodermatology?...Psychodermatology is the study of the connection between the skin and the mind. Understanding and addressing the link between mental health and skin disorders can help to better manage them...reactionscomments
How Being Desperate for Relief From Hidradenitis Suppurativa Ruined My Womanhood (Part 2)...When I put on my first pair of underwear after my surgery, I knew my life would never be the same. Uncomfortable isn't even the word to describe how I...reactions3comments
My HS Story Part One: Jasmine Ivanna Espy...I was only 11-years-old when I was diagnosed with hidradenitis suppurativa. Middle school was already difficult without the addition of a chronic illness. It was difficult because I was a...reactionscomments
Cooper...Cooper Corvus (Or Coop, as their friends call them) is a chronically ill & disabled activist with a passion for advocacy, true crime, heating pads, and vegan junk food. They...
50 Things You Might Need to Hear If You Live with Hidradenitis Suppurativa...So here in New York it’s currently freezing and beautiful and blizzarding out (it’s a verb, I swear). I really love watching the snow but I currently can’t go stand...reactionscomments
Kathryn Marie Shusta...Kathryn Shusta is a social worker and health advocate. She has had Hidradenitis Suppurativa since she was 10 but was not diagnosed until she was 17 years old. It was...
Keto Boneless Buffalo Wings...These wings may sound like a heart attack waiting to happen, but they’re a nice occasional keto treat that I love pairing with my keto-friendly coleslaw! Any HS warriors that...reactionscomments
Three Ways to Feel Sexy with Hidradenitis Suppurativa...Because of the nature of Hidradenitis Suppurativa, whether you identify as a man or a woman in stage I, II, or III, issues with self-esteem can and probably will arise...reactionscomments
Thank You for Taking Our Survey!...We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with hidradenitis suppurativa. New here? We invite you to explore...reactions2comments
Dear My Younger Self...Well hello there, Young Selina. This is your future self. Right now, you’re 25 years old (8 days shy of 26) and about to move into an apartment with your...reactionscomments
Life with HS...I walked past this paper and pen so many times before I actually got over the fear of sharing my story living with Hidradenitis Suppurativa. For years I've been a...reactions1comment
How Being Desperate for Relief From Hidradenitis Suppurativa Ruined My Womanhood (Part 1)...Living with hidradenitis suppurativa whether you identify as male or female is utterly atrocious. While some patients do experience varying degrees of the condition, the same pain, drainage, smell, open...reactions2comments
Hidradenitis Selina and The Tale of the Doctor that Probably Shouldn’t be a Doctor...It’s not a secret that I’ve had Hidradenitis for a long time, and over this period of time, I’ve compiled a doosey of stories about living with it and dealing...reactions3comments
FeaturedWhat triggers your HS flares?...Certain types of foods, products, stress, hormones, smoking, genetics, alcohol, and a host of other factors can cause HS flares. A place to exchange ideas, tips, and experiences all related...reactions38repliesDiet & NutritionFlaresTriggers
Why I Tackle Bloody Sheets Without Conventional Laundry Detergents...I cannot count the number of times I have woken up to bloody sheets. The first few times it happened, I have to admit that I was a little perturbed...reactionscomments
5 Self Care Tips for Patients with Hidradenitis Suppurativa...Self-care is important no matter who you are but having a chronic illness means taking extra steps to ensure you're taken care of due to the toll it may have...reactionscomments
Simplifying Shower Time for the HS Spoonie...Living with a chronic illness can make everyday activities complicated—even when having set supports in place. From dealing with the hassle of slippery soap bottles, lengthy hair washing sessions, and...reactionscomments