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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

Dealing with the physical and mental toll

I am looking for some support. I've had hs for 15 years but only got diagnosed and treated for about 6 months...

Weird scar?

I had a small one in groin area two years ago. It was right where the elastic part of my underwear were...

Managing college with HS..

Hi guys! Rebecca here. I’ve recently enrolled in college as a mature student. I’m wondering does anyone have any tips for managing...

Hidradenitis Suppurativa Lesions and Biofilms

I'm going to include this article from the NIH; the abstract does a fairly good job of outlining why biofilms may be...

Talking to friends about HS

I have been realising recently that I tend to downplay my symptoms to my friends & family as I don’t like letting...

Do you resonate with the term 'rare disease' ?

Too many people live in silence with hidradenitis suppurativa that is grossly underreported and misdiagnosed. Not too long ago, hidradenitis suppurativa was...

Thread of Positivity: Show me your pets!

I wanted to start a thread of positivity so people who were feeling down had somewhere to go to cheer themselves up...

Surgery

Surgery of any kind can bring on a host of emotions. Have you had surgery? What did you experience? Are you considering...

Body Image

I've been struggling a lot lately with accepting my body as it is now. Of course, I have an idea of all...

Chaga mushroom?

I was just wondering, does anyone have any personal experience using chaga mushroom for their inflammation? It comes in tea, powder, and...

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