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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

Bariatric Surgery for HS?

Hi All, I have had chronic HS since my early 20s with little to no reprieve. Constant flare ups, genetic prolonged QTs and fibromyalgia make me unable to exercise regularly...

Best Deodorant for HS

Hey All, My HS has now spread into my armpits, I was wondering whether deodorants weren't helping and making them more inflamed. Anyone have suggestions on the best deodorant that...

Hidrawear

Hey! I'm finally able to get hidrawear ordered but having trouble knowing what size to get. I'm between a size 20 to 24 but not sure if there's anyone else...

Distracting yourself from pain during a flare 💜

How do you distract yourself from the pain during an HS flare? Comment below!...

Piercings and HS

So, I think I'm going to write a blog post about this too, but has anyone had any issues getting piercings while they've also had HS? For instance, I could...

How do you stay positive when you are in a flare?

After months and months of doing "the right things" (e.g. seeing new doctors, eating AIP, sleeping, stress management, exercise, medication - you name it) and being relatively stable, over the...

Hs in your hair and possible hair extensions.

Hi! I’m sorry if this is a silly question but I get he slightly in my scalp. Like some bumps with hurt or some scabs will form it’s not horrible...

Nursing Mothers and Topical Treatments

In various patient groups, I see a lot of discussion regarding what might be safe for nursing moms to use for flares, either open or closed. One of the most...

Chaga mushroom?

I was just wondering, does anyone have any personal experience using chaga mushroom for their inflammation? It comes in tea, powder, and pill form, and I was wondering if anyone...

How do you plan to beat the heat this summer?

Warmer weather is complicated for those living with HS. While we may want to enjoy the warmer months, heat can trigger flares. What are your go-to tips and tricks to...

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