Traveling Abroad with HSI’m on a long holiday, supposed to be having the time of my life- just arrived in New Zealand today and am having such a bad groin flare up that...Reactions 0 reactions Comments1 repliesDepression
Where does everybody suffer? So I have been suffering badly around my whole body, but it would be nice to see if others suffer in certain places such as the face and back. As...Reactions 0 reactions Comments1 repliesCopingDepression
Side effects from anesthesia from surgeryI had a lower penectomy done this spring to remove abscesses. I was feeling great, healing well for two months and then my bowels and digestive system almost shut down...Reactions 0 reactions Comments1 repliesSide EffectsSurgeryTriggers
HS FlaresDoes anyone else have PTSD from HS flares? I find myself afraid to do anything because I'm not sure what will trigger my body to break down. The unpredictability of...Reactions 0 reactions Comments11 repliesPainTriggersFlares
Feeling severly illHello. I am 44 and have not been diagnosed but i started getting bumps on my head at 18 while in the military. Now i have cysts or boils in...Reactions 0 reactions Comments14 repliesCopingDermatologistDiagnosis
What are your tips for finding a good dermatologist?Share your tips with fellow community members! If you haven’t found a good specialist, what challenges have you faced?...Reactions 0 reactions Comments4 replies
How I manage my symptoms. (It has worked very well for 10 years now)My doctors misdiagnosed my condition for most of my adult life. It had progressed to stage II while I was still in my 20's and flare-ups became quite regular. It...Reactions 0 reactions Comments2 repliesOTC MedicationTreatmentTips & Advice
Mental HealthMental health is just as important as physical health.. I am now seeing a different side of myself.. I don't know what I am going through.. My anxiety gets worse...Reactions 0 reactions Comments3 repliesDepression
Comorbidities & Pain with HSMany people living with HS are also managing other comorbidities. Do you have any other health challenges in addition to HS? Does that impact your HS pain? 💜...Reactions 0 reactions Comments0 repliesDiagnosisPain
New to siteHi...I've been suffering with this since late teens, I'm now 52. Until recently I didn't even know this was an actual medical condition even though I been to the gp...Reactions 0 reactions Comments2 repliesCopingNewly Diagnosed