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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

Could it be HS?

Hello everyone I'm wondering if I have HS. Would like to know if other people have similar experience to me. I have been to several dermatologists but they are all...

Self diagnosis

Well, first off I never knew this was a thing until I ran into a video on YouTube and holy cow does this tick every box and solidly inside the...

Blue light therapy

Hi. I was diagnosed with HS recently after having the condition for a few years (but didn't know it had a name) I only get the occasional flare up in...

FOUND STUFF THAT WORKS BETTER THAN THE PRESCRIPTIONS

I have tried all the medical creams prescribed by various doctors. I thought maybe if I used something for shaving rash, it might be preventative. It IS preventative BUT it...

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What is something you wish others knew about HS?

Helping with flare ups

Hi All. New hear but been suffering with HS since I was roughly 15 (now 34 diagnosed at 19) very, very recently after what is years of not knowing why...

How old were you when you were diagnosed?

Getting a correct diagnosis can take so long. How old were you when you were officially diagnosed with hidradenitis suppurativa?...

How do you juggle the pain with work?

Hi, I’m new here. First post. Anyways, I was properly diagnosed about 4 months ago when I had one burst in my groin area (it’s actually still open but they...

Does surgery help?

Adding surgery to a biologic, does that help in any way? Do they return quickly? Is surgery even worth it?...

Tell us you have HS without saying you have HS...

Having to explain your HS to those who don't get it can be exhausting. No explanation is required for this trend - let's hear what you got! 💜...

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