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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

Side effects from anesthesia from surgery

I had a lower penectomy done this spring to remove abscesses. I was feeling great, healing well for two months and then my bowels and digestive system almost shut down...

HS Flares

Does anyone else have PTSD from HS flares? I find myself afraid to do anything because I'm not sure what will trigger my body to break down. The unpredictability of...

What are your tips for finding a good dermatologist?

Share your tips with fellow community members! If you haven’t found a good specialist, what challenges have you faced?...

How I manage my symptoms. (It has worked very well for 10 years now)

My doctors misdiagnosed my condition for most of my adult life. It had progressed to stage II while I was still in my 20's and flare-ups became quite regular. It...

Mental Health

Mental health is just as important as physical health.. I am now seeing a different side of myself.. I don't know what I am going through.. My anxiety gets worse...

New to site

Hi...I've been suffering with this since late teens, I'm now 52. Until recently I didn't even know this was an actual medical condition even though I been to the gp...

Any ideas on dealing with HS and incontinence pads?

I've had HS since I was in my teens. I've also been dealing with incontinence as an older adult. The moisture from wearing the pads and perspiring and no air...

HS and bras

Hello everyone I am new here. Although I've been living with this for years, I was only diagnosed recently. Depression is starting to set in because of having to wear...

Upper Arm Numbness & Pain

Hi, I have had HS since I was 13/14 and was diagnosed when I was 17. I’ve always had pain but recently for the past few months my right upper...

HS Photos

Whether you've been living with hidradenitis suppurativa for several years or you just received a diagnosis, this is a space to share photos of your HS journey. #HSWarriors 💜 ...

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