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Read conversations, start a discussion, and connect with others about Hidradenitis Suppurativa.

Found a relief solution - thank goodness!

Hi all, New here, but today I just figured out a treatment that surpassed everything I've tried for the past 20 years. Benzoyl Peroxide Yes...zit cream. Rub it on the...

Please Help :'(

Hiya :) I need advice please. I have been diagnosed with fibromyalgia & endometriosis. I'm currently on the waiting list for an official diagnosis of hs. I'm currently on no...

Traveling Abroad with HS

I’m on a long holiday, supposed to be having the time of my life- just arrived in New Zealand today and am having such a bad groin flare up that...

Where does everybody suffer?

So I have been suffering badly around my whole body, but it would be nice to see if others suffer in certain places such as the face and back. As...

Side effects from anesthesia from surgery

I had a lower penectomy done this spring to remove abscesses. I was feeling great, healing well for two months and then my bowels and digestive system almost shut down...

HS Flares

Does anyone else have PTSD from HS flares? I find myself afraid to do anything because I'm not sure what will trigger my body to break down. The unpredictability of...

What are your tips for finding a good dermatologist?

Share your tips with fellow community members! If you haven’t found a good specialist, what challenges have you faced?...

How I manage my symptoms. (It has worked very well for 10 years now)

My doctors misdiagnosed my condition for most of my adult life. It had progressed to stage II while I was still in my 20's and flare-ups became quite regular. It...

Mental Health

Mental health is just as important as physical health.. I am now seeing a different side of myself.. I don't know what I am going through.. My anxiety gets worse...

Any ideas on dealing with HS and incontinence pads?

I've had HS since I was in my teens. I've also been dealing with incontinence as an older adult. The moisture from wearing the pads and perspiring and no air...

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