Living with HSI have been living with HS since 2007. The first one started out at the base of the tail bone then it was surgically removed. After that it kept spreading...reactionscomments
My Battle AgainThis is now April 2022.. My Dermatologist dismissed me from her treating me for Hidradenitis Suppurativa. I felt alone again with this battle that is now raging through my body...reactionscomments
HS JourneyI have gotten one lesion for years. Around 2012 I got several lesions in the groin area. No one knew what it was, and I was humiliated. I was married...reactionscomments
My HS JourneyMy first memory of an HS lesion is burned into my brain: I’m a smiley bright-eyed, fair-haired girl, at school in about 4th or 5th grade, walking down the hallway...reactions2comments
Painful and More PainGood morning all.. Hope everyone had a wonderful Christmas.. Well for a week now with no relief insight.. It's the size of a walnut shell on the inner side and...reactions1comment
Loving Someone with HSI imagine loving someone with HS is difficult. Plans constantly changing or being cancelled, the emotional rollercoaster of hospital trips, surgeries and the aftermath of the surgery. Seeing your partner...reactions2comments
Not WellFor the past 3 weeks I have been feeling really ill. I have coughed and just felt drained. So this week a boil reared its ugly head again. I was...reactions9comments
Public AssistanceBeing officially disabled, according to the U.S. government’s definition and designation, is tricky. People who haven’t had to deal with disability don’t know that even that is divided into two...reactions4comments
My Lovie 💜I just wanted to share how much I love my girlfriend and I will always be here to support her through this. She is so amazing, beautiful, and the best...reactions3comments
Hidradenitis SuppurativaI have hidradenitis suppurativa. I had it since 2012, at first, it wasn’t bad but as the years progressed it just got worse and worse; I tried every medicine that...reactions1comment
Blessed AnywaysMy name is Marlena... I have suffered from this for almost 28 years now... I have had MRSA a few times because of this nasty disorder. I have tunneling everywhere...reactions13comments
Welcome to HSDisease.com Stories!At HSDisease.com, we believe that we are stronger together than we are alone. Living with Hidradenitis Suppurativa (HS) can be a challenge, but the more we share and support one...reactions15comments
