24 / 7 pain
Been going through this for years 20 plus. I have tried everything. Nothing seems to work. It seems to get worse as I age. I have been on antibiotics, Humana and now 28 days infusion. Wounds are now open and burning like heck. I am still working because I need the insurance. It is a struggle to go to work every day, and get through the day. My out breaks are on my bottom my inner thighs. They 3 inches long and raised. I have 6 or 7 most of the time. Made some suggestions for pain management.
, my heart goes out to you. You must be in a huge amount of pain. I can't imagine having to work through that. I hope others in the community share their experiences with pain relief. Here is an article that lists some of the options: https://hsdisease.com/clinical/pain-management. Hopefully, you will find something in the article that you haven't tried yet and that helps.
Have you always been with the same dermatologist? If so, have you considered a second opinion? It seems that treatment for HS disease is so individualized. What helps one person doesn't always help someone else. For instance, some people respond to antifungals rather than antibiotics and others find relief by discovering triggers through elimination diets. It can be helpful to find a dermatologist who is intrigued by HS disease and always learning.
Please know we are here for you whenever you need us.
Thinking of you.
- Lori (Team Member)
