Just diagnosed!!

I'm 46 about 3 months ago I got what I thought was a infected or ingrown hair in my left arm pit. I have never had anything like this happen like this. After 3 months of unbearable pain and 4 ER trips to have huge bumps drained. Infection on top of infection. Antibiotics nonstop. They finally said I have HS. I am left handed and just moving my arm at times brings tears to my eyes. I just need some relief for just a little bit. I can't get comfortable to sleep. So I'm in pain can't rest and just plain miserable. I can't imagine having spent most of my life living like this like some of you have. I'm scared I may never be able to live my life pain free again. This had totally taken over my life. I work but somedays it is almost impossible to move because the lumps are so large and inflamed. How do I cope with this. I can't even pick up my grand babies because the pain.