This Is What Happens During A Remicade Infusion (Part 1)Two years ago, my dermatologist and I decided to stop Humira and try a different TNF inhibitor, Remicade (infliximab). As an off-label prescription, this medicine is considered an experimental way... By Kathryn Shusta3 min readBookmark for laterReactions 0 reactions Comments2 comments
My Personal Experience Seeing a General Surgeon When My Flares Get BadHidradenitis Suppurativa is a lot of trial and error when it comes to finding what works best when you’re flaring or having an outbreak. It’s no secret that I try... By Selina Ferragamo5 min readBookmark for laterReactions 0 reactions Comments3 comments
Wound Care Hacks Every HS Patient Should KnowWound care is central to the healing of hidradenitis suppurativa (HS). If wounds are not cared for properly, it can leave room for bacteria growth and possible infection. While every... By Jasmine IVANNA Espy2 min readBookmark for laterReactions 0 reactions Comments0 comments
Heat and HS: How I Plan To Beat The Heat This SummerIt’s almost that time of year again. That time of year when some of us HS warriors find ourselves in an imaginary race trying to beat the heat and keep... By Chelsea Perry2 min readBookmark for laterReactions 0 reactions Comments0 comments
Nightshades - What They Are & Why They Might Trigger YouLike many people who live with HS, it has taken me years of trial and error to figure out what triggers my flares, and somehow the list keeps on growing!... By Cooper3 min readBookmark for laterReactions 0 reactions Comments0 comments
Starting the Autoimmune Protocol Diet for Hidradenitis SuppurativaStarting any new lifestyle is difficult and can be a huge adjustment, but when these steps are implemented while battling a chronic illness there's the added anxiety about how this... By Jasmine IVANNA Espy3 min readBookmark for laterReactions 0 reactions Comments0 comments
Sex & HS: How To Navigate The Bedroom Around Your FlaresThere is nothing that irritates me more than being in the mood only to remember that I’ve got a monster of a lesion between my legs, which can make sex…er... By Cooper3 min readBookmark for laterReactions 0 reactions Comments0 comments
Important Hidradenitis Suppurativa MythsHidradenitis suppurativa (HS) is unknown to most people, even many medical professionals. This ignorance leads to many myths and misconceptions about HS. There are the more common myths that most... By Kathryn Shusta3 min readBookmark for laterReactions 0 reactions Comments0 comments
30 Things You Might Need to Hear If You Know Someone With Hidradenitis Suppurativa (Or If You’ve Never Heard of Hidradenitis Suppurativa)I love lists. I love pro and con lists, to-do lists, grocery shopping lists, “5 Practical Gifts for Chess Players” lists. You name a list, and I’d probably be fascinated... By Selina Ferragamo3 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Discovered My Triggers and Avoid ThemDiscovering my triggers has been an uphill battle. Because our bodies change as we get older and so do my food tolerances. Where I once was fine with eating a... By Jasmine IVANNA Espy3 min readBookmark for laterReactions 0 reactions Comments0 comments
Coming Out As Chronically Ill: How To Talk To Friends And Loved Ones About Your New DiagnosisGetting a diagnosis of HS comes with a whole host of emotions - a relief to finally have an answer, fear of what is to come, uncertainty, anger, sadness… the... By Cooper3 min readBookmark for laterReactions 0 reactions Comments3 comments
PSA: You Aren’t Gross Because You Don’t Shave Your ArmpitsHello everyone! I really hope you’ve been doing well and staying safe and healthy. I thought that today, I would discuss the elephant in the room - armpit hair!! But... By Selina Ferragamo3 min readBookmark for laterReactions 0 reactions Comments1 comments
Podcasts About HS That Are Worth The ListenLet’s face it, today’s society has many of us on the go now more than ever. Early on, we are taught to live relatively routine lives that involve work or... By Chelsea Perry3 min readBookmark for laterReactions 0 reactions Comments2 comments
I Called In Sick To WorkWell, I did the thing. You know the thing. The thing that makes me feel like a monster. The thing I hate doing. That’s right, I called in sick to... By Selina Ferragamo3 min readBookmark for laterReactions 0 reactions Comments0 comments
How To Tell Your Friends About Hidradenitis SuppurativaIf you're like me, then you dread the idea of having to reveal some of the most vulnerable parts of yourself to people who are close to you. Some of... By Jasmine IVANNA Espy3 min readBookmark for laterReactions 0 reactions Comments5 comments
How I Heal Wounds Naturally With Manuka HoneyAlthough I have known that I have had HS for several years now, I only recently started to research wound care and ingredients that could aid in the healing process... By Chelsea Perry2 min readBookmark for laterReactions 0 reactions Comments7 comments
Don’t Sweat It! How To Exercise With HSWe all know that movement is a vital part of keeping healthy, both physically and mentally. (And especially during a global pandemic!) But having a condition that is aggravated by... By Cooper3 min readBookmark for laterReactions 0 reactions Comments2 comments
You Are Not AloneYou are not alone and please don’t forget that. I know that’s easier said than done, but I promise it’s true. I promise that there are other people out there... By Selina Ferragamo3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Most Challenging Part of Hidradenitis SuppurativaRecently I was asked what is the most challenging part of living with a chronic illness. The challenges with hidradenitis suppurativa (HS) are aplenty, so I wrote a list: endless... By Kathryn Shusta3 min readBookmark for laterReactions 0 reactions Comments1 comments
In America: What's That?The In America survey is now closed. Living with hidradenitis suppurativa (HS) can be frustrating. What can make it worse is the lack of information and research available for patients... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments6 comments