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Clara Ocasio

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Clara Ocasio's Status Updates

  1. "Hello there Warriors! how is everyone doing? i been super good even tho, this heat and humidity is causing my tunnels to huuurt, those this makes sense to anyone? is like they are starting to somehow cause a flareup. even tho i wanted the cold to be goneee and awayyyy... oh man i don't think i'm ready just yet lol.
    ¡Hola Guerreros! ¿cómo está todos? He estado súper bien aunque este calor y la humedad están haciendo que mis túneles duelan, ¿esto tiene sentido para alguien? es como si de alguna manera comenzaran a causar una reacción. aunque quería que el frío se fuera y se marchara... oh hombre, no creo que esté listo todavía ja ja."

    1. you're definitely not alone in finding the heat and humidity to trigger flare ups. One of our health leaders wrote about some of her "ways to beat the heat" that I wanted to share with you, https://hsdisease.com/living/beat-heat. It's kind of a hard place to be, being done with the cold and wanting it to be gone, but not ready for the heat and humidity, especially with HS. Sending you gentle hugs! -- Warmly, Christine (Team Member)

    2. Hi . That makes sense since many people swell with warmer weather, especially in high humidity climates. Do you find that your body eventually adjusts as the temperatures remain high? I love that you wrote this in both English and Spanish. Thank you for that! I hope others chime in and that you have a wonderful weekend despite the pain. Best wishes. - Lori (Team Member)

  2. "How is mu beautiful Warriors doing today? Please share im here to listen and show support and love!
    Also does anyone like the idea of a book club? "

    1. Hello, ! Thanks so much for being a part of the community here -- listening, showing support and love. How are you managing currently? Also, book clubs are alway s a great idea! -- Warmly, Christine (Team Member)

    2. Hi . A book club is a wonderful idea! I hope you get interest from the community. Warm wishes. - Lori (Team Member)