What HS Won’t Steal (Part 1)This is a three part series declaring what hidradenitis suppurativa won’t steal from me. In my journey, it has come down to making a decision and declaring what HS won’t...Reactions0reactionsComments0 comments
An Introduction to Acupuncture for HealingIn 2018, after returning from volunteering in Southern Africa, my HS went from barely stage 1 to serious stage 2 and landing in an extreme case of stage 3. It...Reactions0reactionsComments1 comments
Legalization of Medical Marijuana: The Impact on Those Living With Chronic Health ConditionsSurveys show a majority of people in the United States are in favor of legalized marijuana for medical or recreational use. As of early 2022, cannabis for medical use, or...Reactions0reactionsComments0 comments
Cultivating A Peaceful ApartmentMy home is my sanctuary. It's one of the only spaces I feel like I can be my most authentic self. As an adult, I've started investing in my space...Reactions0reactionsComments1 comments
Dealing With Urticaria and HSUrticaria (commonly knows as hives) is like a skin rash. It could get triggered by various factors such as food, weather, flora, fauna, insect bite and so on. Many of...Reactions0reactionsComments0 comments
Recipe for Art: Q-Tip PaintingSometimes during flares or especially painful lesions, those of us with HS are stuck in a loop of depression and inactivity. Art helps us to process our feelings, reprogram our...Reactions0reactionsComments0 comments
Making Health DecisionsIt feels like every time I go to the doctor, they want to make a change to my care. Every change strikes fear and anxiety. Will this new medication affect...Reactions0reactionsComments0 comments
What NOT To Say To Someone With HSHidradenitis suppurativa is awful to live with but you know what makes living with it even worse? Constantly getting certain comments and being told unsolicited medical “advice.” Seriously, no one...Reactions0reactionsComments1 comments
Traveling With HS (Part 2)In the final video, we explore one of the most important aspect a HS Warrior should consider when traveling. I believe it’s essential to consider who you’re traveling with and...Reactions0reactionsComments1 comments
I Am Ready For LoveDeveloping hidradenitis suppurativa (HS), at around 11 years old meant there were little to no opportunities for me to date or experience intimacy. Either because I was so insecure I...Reactions0reactionsComments0 comments
Five Ways HS Has Influenced my WardrobeI often am thankful I exist in this time and space as opposed to years and centuries past, because I have so many clothing choices as opposed to people in...Reactions0reactionsComments0 comments
Navigating Life With HS & Type 1 Diabetes (Part 2)In case you missed it, check out Part 1 of this series! Realistically, I couldn’t blame all of my struggles on my circumstances because I also didn’t have good habits...Reactions0reactionsComments0 comments
Navigating Life With HS and Type 1 Diabetes (Part 1)If you’re reading this article right now, then you or someone you know already knows this to be true: HS can be debilitating and incredibly hard to manage. At least...Reactions0reactionsComments0 comments
Talking To Your Friends About HSWhen I was first diagnosed with hidradenitis suppurativa, I felt an overwhelming sense of loneliness. Anyone who has been diagnosed with HS has probably gone down the same rabbit hole...Reactions0reactionsComments0 comments
Vibe With Me and Let’s De-Stress Together!In this video, Joey shows us how he likes to vibe out and de-stress. He takes us on a virtual trip to one of his favorite places to sit back...Reactions0reactionsComments0 comments
Here’s a List of 50 Distractions and Things To Do Instead of Worry About Your FlaresI worry. It’s just who I am as a person. I worry about things that happened 10 years ago, and I worry about things that happened 10 minutes ago. It...Reactions0reactionsComments1 comments
Talking To My Partner About HS (Part 2)In case you missed it, check out Part 1 of this series! I felt myself starting to ramble on about some of the physical restraints HS has on the body...Reactions0reactionsComments0 comments
Finding The Right Medical ProviderIn this video, I discuss what I look for when I’m deciding on a medical provider. Choosing a provider to walk alongside you in your hidradenitis suppurativa journey can be...Reactions0reactionsComments0 comments
Talking To My Partner About HS (Part 1)You’d think I was about to tell my boyfriend I had a sixth toe or something going by how nervous I was to talk to him about my HS. For...Reactions0reactionsComments2 comments
The Burden I Carry Is Not Light: An Expression of the Emotional Weight of Hidradenitis SuppurativaThe burden I carry as a hidradenitis suppurativa patient (HS) is not light, it is dark. It's as if Dante's Inferno and the book of Revelations had a baby, and...Reactions0reactionsComments0 comments