Underarm flares...I have the most painful access under my arm I don't want to put my arm down. It's just about got me in tears. What are se reliefs have you...Reactions0reactionsComments4 repliesCoping
Hidradenitis Suppurativa at Work...The COVID-19 pandemic shifted my perspective about HS and my job. I work in a court with four day workweeks, 10 hour days. When the pandemic shut down society as...Reactions0reactionsComments1 comments
Dealing with abcess...Seems like soon as one goes away another appears and each time it's little bit more hurtful...Reactions0reactionsComments4 replies
Sautéed Zucchini...As a kid, I wouldn't go near zucchini unless it was in sugary bread. Now, I eat sautéed zucchini every day with anti-inflammatory herbs and spices to help promote healing...Reactions0reactionsComments0 comments
Leaving Your Mark...I was a little bit of a late bloomer. I didn’t get my period until I was 14. I went away to summer camp when I was 13, and one...Reactions0reactionsComments2 comments
Traveling With HS (Part 1)...In this two part video series, I discuss things HS Warriors should consider when traveling with HS. In my first video, I share a few tips and hacks I leaned...Reactions0reactionsComments0 comments
Infliximab Home Infusion...Around a year ago, I wrote about my experience during a Remicade infusion in an infusion center. Since then, I moved and now I receive my infusions in my home...Reactions0reactionsComments1 comments
Walking With HS (Part 5)...In the final video of my Walking with HS series, I talked about the importance of walking alongside family, friends, and other HS Warriors throughout our journey. In case you...Reactions0reactionsComments0 comments
sore fingers and toes acitretin...anyone else got or heard of sore lumps next to their nails after starting acitretin?...Reactions0reactionsComments0 repliesPainSide EffectsTreatment
I Was Open To My Job About My Hidradenitis and It's One Of The Best Things I've Done...I don’t know about you, but sometimes I get nervous to tell people about my hidradenitis suppurativa. Don’t get me wrong, I absolutely love talking about HS to try and...Reactions0reactionsComments0 comments
Traveling with HS...What is your best advice for traveling with HS, especially when going through a flare? Share your tips and tricks in the comments below!...Reactions0reactionsComments0 repliesTips & AdviceTravel
L-lysine and HS...Let me preface this by saying we always, always encourage speaking to your doctor when you try something new, and please don't take this as medical advice. I belong to...Reactions0reactionsComments0 repliesOTC MedicationTips & AdviceTreatment
Coming To Terms With HS...For a long time, I thought that I would never come to terms with having HS. And even now, on some of the harder flare days, I wonder if I...Reactions0reactionsComments0 comments
Kashaya...Kashaya is an Ayurvedic health drink that is said to have numerous healing benefits. This potion is generally used as a remedy for treating minor seasonal issues and infections like...Reactions0reactionsComments0 comments
Educating Others About HS...Although this year's awareness week has passed, it's important to educate others about HS all year round! How do you explain HS to others who are unfamiliar with the condition?...Reactions0reactionsComments0 repliesAwarenessTips & Advice
The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
My Perfect Profession...I’m always so curious about what type of job people with hidradenitis suppurativa have. Hidradenitis is one of the most painful things I have ever had to deal with so...Reactions0reactionsComments2 comments
Affirmations for HS...I am definitely going to write a blog post about this, but does anyone else have any affirmations you love to say to yourself either when you are flaring or...Reactions0reactionsComments1 repliesMental Health
Walking With HS (Part 4)...In my fourth video in my Walking with HS video series, I discuss how I overcame shame as I’ve been walking with hidradenitis suppurativa. In case you missed it, check...Reactions0reactionsComments0 comments
Piercings and HS...So, I think I'm going to write a blog post about this too, but has anyone had any issues getting piercings while they've also had HS? For instance, I could...Reactions0reactionsComments0 repliesDrainageFlaresScaring