What Being Open About My Diagnosis Has Taught Me (Part 2)...In the second video of the series, I discuss how being transparent about my hidradenitis suppurativa diagnosis has helped others. Once I stared to open up, I found that my...reactionscomments
Working A Warehouse Job With HS (Part 1)...I remember the first time my supervisor asked me why I always walked funny. It wasn’t in a disrespectful way or anything, but I definitely remember feeling a little self-conscious...reactionscomments
What Being Open About My Diagnosis Has Taught Me (Part 1)...Along my HS journey, I have learned many things. In this series, I decided to discuss the top five things being open about my diagnosis has taught me. Being open...reactionscomments
Effortless and No Guilt BBQ Chicken...This recipe is super easy to make and also gluten free, sugar free, and low carb! I make it twice a week, sometimes even more! It goes great with cauliflower...reactionscomments
Hidradenitis Suppurativa Can Be Caused By More Than Just Diet...I’m frustrated. I’m angry. I’m thoroughly annoyed. I don’t know how many times this needs to be said, but let me shout it out loud for the people in the...reactions8comments
Is Laughter The Best Medicine Or Is It Just An Old Cliché?...One of my most favorite morning regimes is to head out for a run in the park. As I inhale the crisp warm air and watch the freshly cut green...reactionscomments
Living A Full Life Despite Your Diagnosis...In this video, I share my journey with hidradenitis suppurativa, and how I have navigated living a full life despite my HS diagnosis. This hasn’t been easy, but I have...reactionscomments
Tools for Mental Health Treatment (Part 2)...In case you missed it, check out Part 1 of this series! I previously shared how taking breaks and swimming are two strategies I use to treat my mental health...reactionscomments
Pain Is Not Normal: HS and Mental Health (Part 2)...In case you missed it, check out Part 1 of this series! The following weeks felt very different. I noticed that I was more present in class because I wasn’t...reactionscomments
If you had been diagnosed earlier, what would change?...Dear community, I would like to understand the impact of an early diagnosis of MS on the lives of people living day to day with this medical condition. Is the...reactions1replyHealthcare TeamMisdiagnosis
What I Wish People Knew About HS...In this video, I’m sharing what I wish people knew about hidradenitis suppurativa. I wish people knew how complex HS really is. Oftentimes, people ask questions about the disease that...reactionscomments
Medication Dead End: What Do I Do Now?...I’m standing in the checkout and I’m loaded up with the usual: self-adhesive gauze pads, additional gauze pads, foam tape, 3 bottles of peroxide, one bottle of rubbing alcohol. Is...reactionscomments
Products I Use To Help Manage My HS (Part 1)...Hello beautiful people, in this two-part video series, I speak about some of my favorite products I use daily to help manage my hidradenitis suppurativa. Thanks for watching. Stay strong...reactionscomments
Help! Infected? Go doctor?...Hello! I have HS for approx. 25 years now... So this morning I woke up to a very swollen cheek on the right side of my face. I've had a...reactions1reply
Tools for Mental Health Treatment...Recently I wrote about seeking therapy for my mental health and hidradenitis suppurativa by finding a therapist who has a clinical specialty in chronic diseases. Therapy is one of the...reactions2comments
Low red blood cells...Hello, My husband has been dealing with HS for 2 1/2 years. He is now dealing with low red blood cells and has gone thru several test to rule out...reactions3repliesAwarenessDiagnosis
Getting To Know HS: A Beginner’s Guide Helping Someone With HS (Part 5)...In the final video of this series, I discuss the importance of support and patience when it comes to walking along side HS Warriors. I describe how the support of...reactionscomments
Kokum Juice...Kokum is a summer fruit that has a sharp tangy taste to it. Once it is ripe and dried, it is used as a souring agent in various traditional preparations...reactionscomments
How HS Helped Me Take Control Of My Mental Health...Depression and anxiety are like the sisters I never asked for. They linger around and ask me how I'm doing just to drag me into their lair of despair and...reactions2comments
Garlicky Spinach Dip (Non-Dairy)...Here’s a recipe for an hidradenitis suppurativa modified version of an all-time favorite for get-togethers. This garlicky, non-dairy spinach dip will instantly become a hit when served as an appetizer...reactions1comment
