Boiling Point: Results from the 2nd Hidradenitis Suppurativa In America SurveyFor many people with hidradenitis suppurativa (HS), there comes a point when it seems there are no treatments that provide relief from...reactions1comment
The Blue Light Treatment (Part 2)In case you missed it, check out Part 1 of this series! The first minute was okay. 'Okay' translates to heat as...reactionscomments
Flare Stories: An HS Flare That I’ll Never ForgetI like to think that life consists of a collection of moments ranging from the most memorable times to everyday living. When...reactionscomments
The Blue Light TreatmentIt took me nine years to get my diagnosis of HS. By the time I did, I was wavering between stage I...reactionscomments
Missteps and Misdiagnoses (Part 1)I first noticed it in May of my senior year of high school. A small, purple-ish, veiny bump had emerged from my...reactions1comment
The Mental Labor of Chronic IllnessWhen I was 17 years old, I got my HS diagnosis after 4 years of painful, recurring abscesses. Little did I know...reactionscomments
Friendships & HS (Part 1)How do you talk about what we go through with friends and family? How has HS affected your relationship and friendships? Has...reactions1comment
Painsomnia: How to Build a Healthy Sleep Routine Around the Pain of HSYou’ve probably been there: Tossing and turning, desperate for sleep but in too much pain to do so. Sleep hygiene is an...reactions1comment
Where Do I Start? How to Share Your Hidradenitis Suppurativa Story"I want to share my story but don't know how to start." If this sounds like you, you are not alone. We...reactions3comments
Lessons From the Hidradenitis Suppurativa In America Survey: Quality of Life ImpactHidradenitis suppurativa (HS) is a misunderstood and misdiagnosed condition that greatly affects those who have it. HS symptoms can be difficult to...reactionscomments
Stepping Out Of My Comfort Zone: Isela's Journey With Hidradenitis SuppurativaThe Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to...reactionscomments
A Quick Update!Why hello! It’s been a while since I gave an update on my Hidradenitis Suppurativa so I thought I would take the...reactions2comments
Letting Go Of Shame: Alice's Journey Opening Up About Her HSThe Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to...reactionscomments
Dietary Restrictions and Disordered Eating: What You Need to Know (Part 2)Please note: This article mentions eating disorders and restrictive eating. If you struggle with an eating disorder, please reach out for help...reactionscomments
Embracing Vulnerability: Kristen's Journey To Find Her "New Normal"The Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to...reactionscomments
Red Flags in Healthcare Providers: When Do I Say 'No?'Twelve years ago, I was diagnosed with Hidradenitis Suppurativa. In those years, I have seen six dermatologists, five primary care physicians, and...reactions1comment
Embracing Change: Kim's Journey With Hidradenitis SuppurativaEditor’s note: This post contains images of Kim’s open hidradenitis suppurativa boils.The Editorial Team at HSDisease.com is highlighting HS warriors and their...reactionscomments
A Real Unicorn (Doctor): Part 2In case you missed it, check out Part 1 of this series! Here is how my first visit went: we did try...reactions14comments
A Real Unicorn (Doctor): Part 1Even in the rare disease world, I am rare. I have seven rare diseases, and another twelve not-so-rare diseases (and when you...reactions6comments
Overcoming Adversity: Hayley's Journey to AcceptanceThe Editorial Team at HSDisease.com is highlighting HS warriors and their journeys in our Voices of the Community interviews. We talked to...reactionscomments
