How HS Helped Put Me On A Path To Sobriety...In this video, Joey speaks about his long-time battle with cigarettes and alcohol. Also, Joey speaks about how HS has helped him with living a sober life....Reactions0reactionsComments2 comments
Treatments I have found effective ...I thought I would share some insight on what has helped me in the last few months as I have seen a very positive change. I have had HS for...Reactions0reactionsComments2 repliesDiet & NutritionTreatmentTriggers
How HS affects osteo-arthritis...Looking for some answers as to how HS works to make OA worse. Just diagnosed with arthritis, have had an HS diagnosis for 20 years. I hit menopause and it...Reactions0reactionsComments1 repliesDiagnosis
Could it be HS?...Hello everyone I'm wondering if I have HS. Would like to know if other people have similar experience to me. I have been to several dermatologists but they are all...Reactions0reactionsComments1 replies
Fully Accepting my HS (Part 2)...To this day, I still don't have a specific dermatologist or anyone I go to for HS. I think that’s partly because of the experience of having other doctors not...Reactions0reactionsComments2 comments
Self diagnosis...Well, first off I never knew this was a thing until I ran into a video on YouTube and holy cow does this tick every box and solidly inside the...Reactions0reactionsComments1 replies
Recurring spots ...Hi everyone, I have a question. I have a very interesting blemish under my breast which is a place I frequently get HS but I’ve never had it present like...Reactions0reactionsComments3 repliesFlaresScaringSymptoms
FOUND STUFF THAT WORKS BETTER THAN THE PRESCRIPTIONS...I have tried all the medical creams prescribed by various doctors. I thought maybe if I used something for shaving rash, it might be preventative. It IS preventative BUT it...Reactions0reactionsComments1 repliesFlaresOTC MedicationScaring
Blue light therapy...Hi. I was diagnosed with HS recently after having the condition for a few years (but didn't know it had a name) I only get the occasional flare up in...Reactions0reactionsComments1 repliesNewly DiagnosedScaringWound Care
Active yesterdayI Cured My Lifelong HS...I’m now 53 and have just recently stumbled on HS and started reading it and it was a true revelation.. This was the answer to the biggest mystery of my...Reactions0reactionsComments8 repliesDermatologist
I Found My (Hidradenitis Suppurativa) People...I’ve always been an oddball. I didn’t quite fit in with the farm kids when my family moved from a big city of 1.5 million to a town of 300...Reactions0reactionsComments0 comments
Helping with flare ups ...Hi All. New hear but been suffering with HS since I was roughly 15 (now 34 diagnosed at 19) very, very recently after what is years of not knowing why...Reactions0reactionsComments1 repliesDiet & Nutrition
Work Life Juggle...I started experiencing hidradenitis suppurativa not even 3 years ago now. I am 23 going on 24 and currently have 7 painful open sores in my groin area, all of...Reactions0reactionsComments2 comments
Does surgery help?...Adding surgery to a biologic, does that help in any way? Do they return quickly? Is surgery even worth it?...Reactions0reactionsComments3 repliesDrainageSurgeryTips & Advice
How do you juggle the pain with work?...Hi, I’m new here. First post. Anyways, I was properly diagnosed about 4 months ago when I had one burst in my groin area (it’s actually still open but they...Reactions0reactionsComments3 repliesDepressionInsurance & DisabilityWork & Employment
Has anyone (UK) tried going private for treatment?...Hi there, I’m moving to the UK (Liverpool) and wondered if anyone had gone for private treatment for HS and had any joy? Thanks...Reactions0reactionsComments2 repliesDermatologistTreatmentTips & Advice
Please Don’t Make Me Feel Guilty for Having My Triggers...As I type this, my hidradenitis suppurativa is going haywire. After a few months of doing great, I now have multiple flares on my stomach, inner thigh, and near my...Reactions0reactionsComments2 comments
Going vegan cured me...I went vegan 10 years ago to help recovery times after all night raving in my 40s. I'd had six surgeries for HS before that, I've had none since, and...Reactions0reactionsComments3 repliesDiet & Nutrition
diatomaceous Earth food grade ...I was desperate for a way to stop the crazy sweating and pain from my pits. I was having flares every 15 days. I impulsively bought some diatomaceous earth powder...Reactions0reactionsComments1 replies
What scrubbers do you use when taking a shower? ...I have used many things and I find loofas case irritation and lead to a flare up....Reactions0reactionsComments1 repliesFlaresCaregiving