Has anyone had boils on the scalp and suffered severe hair loss?...Would like to discuss...Reactions0reactionsComments1 repliesFlares
Elimination Diet...Hidradenitis suppativa is a chronic skin disease which causes inflamed lesions sort of like boils on the skin. Many people on the internet will say they have a magic cure...Reactions0reactionsComments0 comments
Please Help :'(...Hiya :) I need advice please. I have been diagnosed with fibromyalgia & endometriosis. I'm currently on the waiting list for an official diagnosis of hs. I'm currently on no...Reactions0reactionsComments1 replies
Traveling Abroad with HS...I’m on a long holiday, supposed to be having the time of my life- just arrived in New Zealand today and am having such a bad groin flare up that...Reactions0reactionsComments1 repliesDepression
Where does everybody suffer? ...So I have been suffering badly around my whole body, but it would be nice to see if others suffer in certain places such as the face and back. As...Reactions0reactionsComments1 repliesCopingDepression
Side effects from anesthesia from surgery...I had a lower penectomy done this spring to remove abscesses. I was feeling great, healing well for two months and then my bowels and digestive system almost shut down...Reactions0reactionsComments1 repliesSide EffectsSurgeryTriggers
Hidradenitis Suppurativa and the Lymphatic System...Hidradenitis suppurativa (HS) is a chronic skin condition that causes painful, swollen lumps and tunnels under the skin. It usually affects areas of the body with hair follicles, such as...Reactions0reactionsComments0 comments
Feeling severly ill...Hello. I am 44 and have not been diagnosed but i started getting bumps on my head at 18 while in the military. Now i have cysts or boils in...Reactions0reactionsComments16 repliesCopingDermatologistDiagnosis
After 30 Days......In the last article, I wrote about fasting and clean eating again. I detailed how I’ve finally committed to putting my stage 3 HS in remission. It has not been...Reactions0reactionsComments0 comments
Something that might work 🥹...Hi I have lived with HS since I was 13 and I thought I would never get better and it’s just something I was cursed with. I tried pills loosing...Reactions0reactionsComments3 replies
These are some things that have worked for me (or that have at least seemed not to cause any flare ups)...Related details about my HS: I was diagnosed around 1.5 months ago. Before I was diagnosed, I was not using any of these things. I had decided to go to...Reactions0reactionsComments1 repliesTips & AdviceTreatment
Fasting... Again...Editor's note: Please check with your doctor before making any changes to your diet. I recently decided to become committed and disciplined to healing my stage 3 hidradenitis suppurativa. I...Reactions0reactionsComments0 comments
New to site...Hi...I've been suffering with this since late teens, I'm now 52. Until recently I didn't even know this was an actual medical condition even though I been to the gp...Reactions0reactionsComments2 repliesCopingNewly Diagnosed
How I manage my symptoms. (It has worked very well for 10 years now)...My doctors misdiagnosed my condition for most of my adult life. It had progressed to stage II while I was still in my 20's and flare-ups became quite regular. It...Reactions0reactionsComments2 repliesOTC MedicationTreatmentTips & Advice
HS and bras...Hello everyone I am new here. Although I've been living with this for years, I was only diagnosed recently. Depression is starting to set in because of having to wear...Reactions0reactionsComments3 repliesCopingDepression
Any ideas on dealing with HS and incontinence pads?...I've had HS since I was in my teens. I've also been dealing with incontinence as an older adult. The moisture from wearing the pads and perspiring and no air...Reactions0reactionsComments3 replies
HS and chronic folliculitis? ...Does anyone else suffer with both? I have really bad chronic folliculitis on my buttocks along with very painful and large HS boils and abscesses. They never go away. Anyone...Reactions0reactionsComments1 repliesDermatologistFlaresTreatment
Dapsone - what to expect/testimonies?...Hi all, I started Dapsone 50mg daily about 2 and a half weeks ago now and I'm not noticing anything different. I thought maybe my HS was improving slightly but...Reactions0reactionsComments1 repliesDermatologistTreatmentCoping
I Can’t Afford Prescription Medications for My Hidradenitis Suppurativa – What Do I Do? (Part 2)...In case you missed it, check out Part 1 of this series! How can we forget that Amazon has everything? I did some searching for a few of my medications...Reactions0reactionsComments2 comments
I Can’t Afford Prescription Medications for My Hidradenitis Suppurativa – What Do I Do? (Part 1)...I’m nearly 50 (okay, about a year and a few months away from the big 5-0), and I was a sick kid who grew up to be a sick adult...Reactions0reactionsComments2 comments
